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Chronic migraine
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ellsworth52 posted:
I have 15-25 migraines per month; most times it seems like I have migraines non-stop. My abortive, Zomig, works every time, though it takes 2 hours to work. Rarely do I need a second dose. But I am so tired of taking migraine meds all the time. I am wondering if doing this can cause rebound headaches like OTC meds can. I have no other recourse at the moment even if this can happen, as nothing else helps. Comments?
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jules1202 responded:
Have you tried any preventative meds? That is A LOT of days to be taking a relief med. With that many (and yes sadly I was having that many also before I sought help from a specialist)
Yes, the precautions for Zomig include "Overuse of drugs to treat sudden migraine attacks can sometimes lead to worsening of headache (medication overuse headache) or rebound headache. Therefore, do not use this medication more often or for longer than prescribed. Tell your doctor if you need to use this medication more often, if the medication is not working as well, or if you have more frequent or worse headaches. Your doctor may need to change your medication and/or add another medication to help prevent headaches." http://www.rxlist.com/zomig-drug/consumer-uses.htm
Does your dr. know you are taking the Zomig that many days a month?
 
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ellsworth52 replied to jules1202's response:
Yes Jules 2012, my doctor does know how many migraine days I have each month and that I take Zomig each and every time. Unfortunately she is a new doctor because my old doctor just retired; so I'm having to start all over explaining my migraines, what I've tried, etc. She is going to start me on a beta blocker (actually for my heart), that she is hoping will also help with my migraines. I know she is taking " baby steps" as I am a new patient, but I might have to go back to my Neurologist (who gave me the "acute, chronic migraine" diagnosis) to see if she can start me on something else. I do feel like I am getting rebound headaches - do you have a suggestion on how I can stop this horrible cycle I'm in? I've tried just coping with the pain, but after a few hours of excruciating pain, I give in and take my meds to get relief. Thanks for responding.
 
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jules1202 replied to ellsworth52's response:
Yes, definitely try some preventive meds like the beta blocker and please don't get discouraged if the first one doesn't work very well. Its really not good for your body to take that much Zomig and odds are some of those are rebound headaches. It took me 3 different meds before I found a preventative med that worked well for me (a combo of actually helped get rid of headaches and didn't cause side effects).

Here is a great link listing the different medicines available for migraine prevention. http://www.healthcentral.com/migraine/medications-161082-5.html

Also if you have an i-phone I highly recommend getting the iHeadache app (made by a neurologist) that lets you track your headaches. This will help you figure out if the medicine is really helping or not. I still get alot of migraines even with prevention meds (like you I am a 20 a month person) but they don't last nearly as long and aren't usually as intense.

I would also look into magnesium, feverfew, and B-2 - all of which are shown to help prevent migraines.
I take Migrelief (OTC, which magnesium, B-2, and feverfew in it- but recommended by my neurologist) and it actually allowed me to cut back on my RX meds (that have side effects I don't like).
 
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ellsworth52 replied to jules1202's response:
Thanks Jules - I decided that I am having rebound migraines from all the consecutive days I take Zomig and most often Zomig & Alleve together. Unfortunately my new doctor is not a good resource for me as a primary care physician. Anyway, I am on the third day of going "cold turkey" - I am taking no meds at all. I'm suffering all day with a headache and excruciating migraine pain every morning. I am determined to get out of this rebound headache cycle, so I can get back to taking Zomig only when a migraine hits. I did a trial of Petadolex (Butterburr) for 6 months and though it decreased my migraines significantly, I started having hot flashes at least 10 times a day. This was not acceptable to me, so I stopped taking the Butterburr. Magnesium does the same thing - I'm not talking about normal hot flashes - I 'm talking about drenching hot flashes lasting about ten minutes each time. I just ordered a product called Gelstat Migraine that is homeopathic (I have used Homeopathics before with other conditions and have had good results). Gelstat is feverfew and ginger root; I think it is worth a try. I am so tired of trying different prescriptions that only work for a short time or don't work at all. I' m not blaming medical doctors - I'm sure they are at a loss as to why nothing works well for me. I have already quit drinking alcohol , don't eat meats with nitrates, and I don't eat any processed foods. I eat Chia seeds daily and I'm starting to eat quinoa grain every day - both of these are supposed to help with headaches. I am hoping I can get my migraines under control this way, naturally, using Zomig only when absolutely necessary. FYI - my Neurologist did a complete work up on me and there is nothing conclusive as to what is causing my acute chronic migraines. I know this is frustrating for most of us who are migraine sufferers. So I am "taking the bull by the horns" and taking a proactive approach on my own. I'll keep you posted of this journey which I know isn't going to be easy. Shirley
 
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jules1202 replied to ellsworth52's response:
Good luck! Sounds like you are on the right track. Also, if you don't already take one I forgot to recommend a good quality omega 3 sometimes is helpful with migraine prevention (anti-inflamatory). Its also great for the joints, I have arthritis and my joints haven't been this pain free in years (which is really sad since I am only 37 but I have old bones!)

This is the one I have found that is the best combo of quality/price/no fish burps - http://smile.amazon.com/gp/product/B00FM9KNSI/ref=oh_details_o02_s00_i01?ie=UTF8&psc=1
 
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ellsworth52 replied to jules1202's response:
Fourth day - woke with another bad migraine and went back to bed. Felt better in two hours. So far I don't have a headache - this is encouraging.
 
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ellsworth52 replied to ellsworth52's response:
Fifth day - and I woke up without a migraine!! BUT the most amazing thing happened yesterday - I did not have an all-day headache! I kept waiting for it to come on - it never did and I went to bed feeling good. The reason I say amazing is I haven't had a headache- free day since June 5th. I wish now I had found out about rebound headaches sooner. Withdrawal wasn't easy but it also wasn't as bad as I thought it would be. Maybe that is because I only had experienced rebound headaches for a few months, and I was only taking Zomig with Alleve. I don't know but I am so happy not to have that daily headache that always ended with a migraine. Now let's see if it stays that way.
 
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ellsworth52 replied to ellsworth52's response:
Fifth day and I didn't wake up with a migraine! Most interesting though is yesterday I did not have an all- day headache. I kept waiting for it. I am so glad I found out about rebound headaches. I went through four days and nights of no medications entirely - it was horrific, but if this day is indicative of how I will feel daily now - omg it was worth it. It is easier to deal with my chronic migraines than daily rebound migraines. Let's hope for the best! Shirley
 
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jules1202 replied to ellsworth52's response:
Yay for a headache free day!!!!!!!!

Isn't sad when a headache free day is more rare than a day with a headache?!?! My husband never gets them so he has no comprehension of the long term suffering involved.

Hoping and praying some preventative meds will help keep them away so you get a lot less of them!
 
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ellsworth52 replied to jules1202's response:
Yes, me too. I see my doctor in two weeks - having heart problems - I have to start on heart meds and hopefully a new migraine preventative. I received the Gel Stat Migraine yesterday; now it is available to me also when a migraine starts. You sound a lot like me - though I am 62 - I have arthritis and osteoporosis along with fibromyalgia. It has to be harder on you because you are so young.
 
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rosielou replied to ellsworth52's response:
Hi Shirley,

I was following your experiment with butterbur a few months ago and am sad to hear it didn't work out for you. This recent bout has sounded terrible but so glad to know that you've actually had some migraine-free days! That's wonderful.

My preventatives mix has me down to about 3/week in the summer, and milder than ever. I use the Maxalt generic as abortive and it's only 20 minutes until the pain is gone, but I'm still fatigued, foggy, and dumb as a duck for hours. Sometimes my OTC Blowfish (aspirin and caffeine) has been enough to knock out a morning migraine, I love that stuff.

I hope your upcoming doctor appointments help with all your problems, and that you get good preventatives.

Rose
 
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rosielou replied to jules1202's response:
Hi Jules,

I'm curious about the headache app you mentioned.

I've been using the My Pain Diary app for a few years to log pain from migraines, fibro, and arthritis, and really like it. But it sounds like the one you use might be better for headaches.

Appreciate your help. Rose
 
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ellsworth52 replied to rosielou's response:
Hello Rose - I,too, was very disappointed with the Butterburr side effect. It was an excellent product that took me from 20-25 migraines a month to 10-12 a month! But ten intense hot flashes a day were just too much for me. This month I have had 16 migraines so far. Yesterday I started to get one in late evening, so I took my first dose of Gel Stat Migraine. The taste isn't bad and it is easy to keep the liquid under your tongue for at least 60 seconds. It slowly erased my pre- migraine symptoms and I didn't wake up with a migraine. I must admit I was apprehensive thinking I should take a Zomig also. I held out and was pleasantly surprised that I didn't need it. I am hoping for just as much relief as the Butterbur provided, though the Gel Stat is NOT a preventative, it is an abortive. It would be wonderful if this product provides continuous relief. Maybe and that is a big maybe, I won't have to start a preventative. We'll see. Always, Shirley
 
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rosielou replied to ellsworth52's response:
Shirley, I'll put that Gel Stat Migraine on my list. I'm going to the vitamin cottage on Friday and will see if they carry it. Would rather use something like that first and see if it works. And if it doesn't there's a Maxalt in its horrible packaging that's so difficult to open when I can't see straight! -83D-E01 Rose


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