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MS in Trinidad and Tobago?
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Cindy_Ra posted:
Ok, so I'm going to try and start a support group in T&T. If you're from here know someone with MS, have been diagnosed with MS, let's start talking.

There's no need to divulge any details about yourself. I'd just like to know about neurologists here, treatments AND most impo we can be there to support one another!!!!!

I'm getiing better and better at positive thinking
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Vashram responded:
Hi, i was recently diagnosed with MS and it would be comforting to know of persons in Trinidad with the disease. I still have to see a neuro-physicist, Dr Aleong in POS whom my eye specialist referred me too. It would be helpful to know of any other
 
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TriniCupid responded:
Hi. Let me know how you progress.
My dad has been diagnosed with MS
 
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ydnew68 replied to TriniCupid's response:
Hi... my 21 year old son was diagnosed with MS 5 years ago... It's real challenging ... the cost of the medication is quite exorbitant and we cannot afford it... please let's share info on how you all cope.
 
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seashells_1 replied to Vashram's response:
Hi do you have a contact number to set up an appointment with Dr. Aleong?
 
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muhaajir replied to ydnew68's response:
Hello,I'm new to this site. I have been diagnosed with ms four years ago. I would really like to help. I get the med. free at the hospital.I would like to know if you are or do you see yourself & your son as positive people?
 
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muhaajir replied to Vashram's response:
Hello,I'm new to this site. Did you get through? I was dia. Four years ago & I'm seeing dr. Esack @mt.hope hospital.
 
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ydnew68 replied to muhaajir's response:
Well I just got a referral from my son's neurologist to join Dr, Esack's Clinic at Mt Hope. We haven't had an appointment date yet. Im waiting for them to call. Anyways, you indicated that you get the medication for free. My son has remitting/relapsing form of MS and was prescribed Avonex... what do you use and what form of MS were you diagnosed with? Blessings
 
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muhaajir111 replied to ydnew68's response:
Sorry for the very late reply. Did you get through? I was diagnosed with the same type, after staying a few times in the hospital,it now looks like a different type of MS.I think it's called Relapse Progressive MS. My medication is betaferon,obtained at the pharmacy in Mt.Hope.By the way,how's your son?
 
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muhaajir111 replied to muhaajir111's response:
Ps,I think you need to be in the clinic to get the med.
 
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muhaajir111 responded:
Good day,there are some people who want to launch a MS society in January. Do you know of anymore people with this condition?
 
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muhaajir111 responded:
Hello,I also have MS,can I have a contact number for you?


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