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Ampyra...
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swampster1952 posted:
I started taking Ampyra today. Hopefully I will realize some nerve signal conduction improvement with it.

Dave
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An_204754 responded:
I have started taking Ampyra today - how is it going so far?
 
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kgnsn responded:
i have been taking it for a little over a week and began to notice the difference within 3 days. my family was totally amazed at the difference with my walking and the decrease in difficulty i had been having with my right leg. i am loving it, it has even boosted my spirits because i can walk better. i also do wii-fit yoga and balance games, that is helping also. good luck to u both.
 
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sandyf21 responded:
I was prescribed 4-AP by my neurologist and it has helped. It is a compounded drug by the pharmacist and is like Amprya and much cheaper. They are unable to compound it now since the FDA approval of Amprya. Have you ever used 4-AP?? It has helped me and I am hoping for insurance approval of the Amprya. The Amprya might be better since it is sustained release. Good luck with the Ampyra.
 
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ssbpah responded:
Hey Swampster---

I was just approved for Ampyra, and should have it within the week. I am rather excited about trying it! Good luck, and keep us posted!

SandyB
 
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An_204755 responded:
I started taking Ampyra on May 22. I don't know if it is mind over matter, as common sense tells me it is too soon to tell, but I do feel my walking has improved slightly already. I only hope it keeps improving. One thing I can report is my Neurologist informed me he had good results from this Drug when he prescribed it for me (which was on May 13).
 
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mckbee replied to kgnsn's response:
I have been approved for Ampyra, am scheduled to receive the drug on Friday May 28th. I am prayfully hoping that I will receive the same sort of response. I hope you keep doing well.
 
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swampster1952 responded:
Hello All,

As mentioned, I started taking Ampyra last Friday, which means today is my 6th day taking the drug.

I can't really tell if I have any improvement from taking it or not. I do think there have been subtle improvements in my leg coordination an cognitive function but...nothing dramatic that points to that eureka moment of "ah hah, this is it!"

I am still optimistic however!

Dave
 
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AuntyTess responded:
Good Morning,

Could you please give me an update on how the Ampyra is working (or not)?
 
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swampster1952 replied to AuntyTess's response:
Hello Aunty Tess,

I have been taking Ampyra now for 11 days and so far nothing dramatic as far as improvements in walking do. As I stated before, there may be some slight improvement, but it is too subtle to define.

Dave
 
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AuntyTess replied to swampster1952's response:
Morning Dave,

Thanks for your reply. I am walking better but my balance is still off. I definitely think it is working because before I started taking it I was struggling walking. I really hope you see a difference soon. On a separate issue, I go for my Tysabri on Thursday, I am apprehensive, but I also know it has got to be done.

Have a good day.
 
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shotsy66 replied to AuntyTess's response:
Aunty Tess,

Please let us know how the tysabri infusion goes. I go for my MRI on Friday after 6 tysabri infusions.

Beth
 
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AuntyTess replied to shotsy66's response:
I will, and good luck to you for the MRI - I hope you get a good result. With my Neuro I get the results about half an hour later - is yours the same?
 
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shotsy66 replied to AuntyTess's response:
Aunty Tess

Yes I get the results right away. As soon as the MRI is done it is faxed to my neurologists office. So I call him the next day and he gives me my results. Again good luck to you and I am sure you will be pleased with not having any side effects.

Have a good day.

Beth
 
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ssbpah replied to swampster1952's response:
Hi Dave, and all!

I have been really really hoping I could say this. Today was my 5th day on Ampyra. I started noticing some subtle things, but tonight I didn't walk like Herman Munster! Eureka, Dave!

SandyB


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