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The "silent symptom" that no one wants to talk about...
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deafedteacher posted:
Hi everyone! I am going to broach the taboo topic... sex. Since being diagnosed 6 years ago my libido has dwindled by the day to the current state: I love my husband, I had always enjoyed sex, but these days I just have no interest in sex.

I know all of the suggested stuff like: in the morning you have more energy; take time for the romance first; yada yada yada, blah blah blah...

I really couldn't care less about sex and that makes me feel terrible. Is there anyone else out there who has experienced this? How do you handle it?

Pam
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billiepoo replied to justducky65's response:
Wow!! I don't have anyone that I can talk to about the lost libido. My doctor of course puts the blame on MS and says there is nothing that can be done to cure the lost libido. I say that if they found something for "Bob" why can't they find something for "Mrs."? I have tried the KY Intense and it does work to an extent but you have to worry if the gel is irritating your hubbys tallywhacker.
I say that all female MS sufferers should get together and go to the place where "bob's" stuff was made and demand they make something for us ladies.
 
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hackwriter responded:
Hello all,

I think Bob's a hoot. My partner and I just laugh through those commercials, as well as some others for "member-enhancing" enzymes. It's such a racket, it's hard to take seriously.

I have the same story as you all. I wouldn't care if I never had sex again. The only reason I make the effort is because I'm in a relationship.

I can still "get there," but it is very hard and very frustrating, and the climax is almost not worth the effort. It is more like a spasm than an orgasm and can even be painful. And I've lost so much sensitivity in the errogenous zones that I have to believe MS is the culprit.

That said, I agree that sex happens mostly in the head. Clearing my mind and focusing on the touching helps that "brain-skin connection" function better.

I'm 52, and I guess hanging in there and trying makes me feel more like the girl I once was.

Kim
 
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mmthlvr replied to hackwriter's response:
Painful is right, intense burning lower left side, what is up with that?

Here's a question for those topical maale inhancement creams. If it "enlarges" male organs wouldn't your hands also get bigger putting it on?
 
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hackwriter replied to mmthlvr's response:
LOL....kind of like getting hairy palms from applying Rogaine!
 
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deafedteacher replied to hackwriter's response:
You guys are too funny!!! made my day!!
 
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deafedteacher replied to billiepoo's response:
agreed! I dont understand why they cant figure something out for us women and men that are suffering from this.
 
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mssuperwoman responded:
I really feel that a womens lack of sex drive is usually more psychological (lack of self esteem, depression, body image issues) than physical. My husband and I have an amazing sex life and I am thankful for that. After 6 yrs. of marriage and a total of 13 years together it just keeps getting better!
 
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Cyncla responded:
And here expected something about urinary troubles - HA!

What a suprise - and not in a bad way.

I'm very new here and jump in now and then, even though I don't get a response, 'cus this is a great place and now I think I love you guys.

Someone actually used the term tallywacker LOL Haven't heard that term in ages.

This hasn't come up as a problem for me in my female MSer life, yet, but I know it can so ... the husband and I are at it more often now to make up for future times.

Think - the ant hording for the winter - LOL
Thank you everyone who has written here and oh - hey , those "Bob" comericals crack me up big time.
 
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Csewhappy replied to Cyncla's response:
Hi Cyncla ...

Sorry, nothing to do with this post ... which I LOVE reading I just felt bad that we haven't written back to you. Very remiss, sorry. Welcome.

I love this board too.

Best wishes,
Carol
 
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Cyncla replied to Csewhappy's response:
Thank you and no problem - lots - o - people here and alot of new people too so it's easy to get missed in all that's going on.

I'll just keep jumping in now and then and see how it goes.
 
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Jeffrey A Rumbaugh, MD, PhD replied to Cyncla's response:
Sexual dysfunction in multiple sclerosis can happen for many reasons. As suggested, it can happen because of lack of sensation, or it can happen for any reason that any woman or man even without MS develops it, such as psychological issues. Sexual dysfunction also often goes along with bowel or bladder dysfunction because the anatomical pathways overlap to a large extent. Sexual dysfunction in MS is usually best managed by a urologist (or a gynecologist for a woman), and is treated essentially as for patients with sexual dysfunction who don't have MS. For men, this usually means with medications like Viagra or Cialis or sometimes with external or internal mechanical devices. For woman, it is unfortunately much harder to treat--if it is pain or lack of sensitivity then medications directed towards that issue could help, but are often ineffective, if it is lack of libido then addressing possible psychological issues could help.


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