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I have to pay full price for my betaseron does anyone else
billiepoo posted:
I am on a limited income and have been paying full price for my betaseron each month. does anyone else have this problem
hackwriter responded:

The pharma companies who make our therapies all have patient assistance programs to help with the cost. I have no insurance, no Medicare/Medicaid, and my income is only what social security disability pays me. I never paid a dime for Copaxone or Rebif. Now I'm on Tysabri, and Biogen idec is also covering the drug 100%.

purple2413 responded:
Did you ever find help with your Betaseron? I have 3 extra boxes I no longer use. Do you need them?
Snax818 replied to purple2413's response:
My Friend has just been given the devastating news 2 weeks ago that She has MS, it seems to have compleatly destroyed her and her family with the stress from the news. Now finally coming to terms with having MS and knowing that there is Medication to help with it she reseved a Prescription Price Quote for 5 medications that come to a total of $16,917.64.
Devastating news at this price as the low income household who is already struggling before this devastating news of having MS now this and without insurance, no Medicare/Medicaid her father has basicly just give up and said there is nothing they can do about it. My Question is:-
Is there some how or some way for her to get help? I have searched high and low on the inertnet to try and help and im all out of ideas! I just want to help and i dont no were to start! Any information would be so greatful.
Thank you
hackwriter replied to Snax818's response:

All of the companies who make these drugs have patient assistance programs and will offer nearly total coverage (perhaps a $25 co-pay) for those without insurance and who are low income.

You can fill out an application online or call about the patient assistance program to determine eligibility. Your friend doesn't have to go without these therapies. See links to those websites below:

Biogen makes Avonex, here's the link for patient assistance:

Teva Neuroscience makes Copaxone:

EMD Serono makes Rebif:

Bayer makes Betaseron:

Novartis makes Gilenya:

Hope this helps.

Nadina_MS_Support replied to Snax818's response:
My name is Nadina and I manage a Novartis Pharmaceuticals Corporation Facebook community that may be of help. We established this community as another way to connect and answer questions that patients often have about our product.

Please click here to see our response to this common question or to get your question answered directly within the community. You can also call our support line at 1-866-398-2842.

Thank you for allowing me to participate in this discussion. I look forward to connecting with you to provide you with the most accurate information to help with your treatment decision.
An_253630 responded:
I have nine boxes of betaseron, that my wife who has MS. She no longer needs it because her body as become immuned the medication. She is now taking a different medication.
hackwriter replied to An_253630's response:
Ask her neurologist about turning in the unused betaseron, s/he might either dispose of it in an appropriate way or give it to another patient.


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