I am recently diagnosed with MS and have been on Copaxone for just a month now. My symptoms have been increasing. Now the burning in my right leg is getting out of control. All day and all night long. My legs also stay cold as ice. I have to keep leg warmers on or a blanket on all the time. What can I do? Has anyone else had this problem?
I was dx almost 6 years ago. MS affects the left side of my body and my LEGS. I can't tolerate cold weather, such as using a blanket on my legs when I drive, in restaurants, doctor offices, church, etc. the colder it gets the worst it is. I know what it feels like when you say your cold to the bone. I talked to someone recently and suggested that when we get this cold feeling, is to drink plenty of hot liquids this will help. Sometimes i get so cold I can't even drive the car. I use long underwear, sock for hunters for 35 and below and nothing warms me up, i stay cold from the thighs down. i was on copaxone, before and now on Avonex. I hope this help know that you are not alone, in feeling the way you do, hold on spring is coming. I get so cold that I walk like Frankstein. Sometimes I get so cold it hurts, I have to take a pain pill to ease the discomfort
UGH - I get the same burning feeling too. Nice to know i'm not crazy. I dont understand how my hands and feet are freezing and my upper thigh on fire? Im on Betaseron so i'm thinking its a ms thing and not a med thing.
I have had this issue in the past. My neuro put me on neurontin and baclofen for the burning sensation and tremors. If you are not taking these meds talk to your neuro. My dosage was adjusted several times before it was under control. Good luck!
I think copaxone takes a while to get into your system. I am not quite sure but I heard it is like 9 months. My legs did that for a while and my doctor gave me a drug called Baclofen. Call your doctor and let him know what is happening. He might have a better suggestion.
please try low dose naltrixon. it is available by the name of naltima. 50 mg tablet is to be dissolved in 50 ml distilled water and take 2.5ml of this water once every night at about 10 to 11 PM. You can use the dose by keeping the liquid stored in refrigerator for upto 25 days. slowly increase the dose, but max is 4.5 ml. see if u feel better. regards. rajeev, india
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