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Possible MS..your opinions Please!
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tml1016 posted:
Hello,

I am new to this site and would like to get your opinions on possible MS.

I have an MRI scheduled for tomorrow morning because my primary care doctor wants to "be on the safe side" and check for MS. I am 37 years old and a mother of 4:)

The reason for his wanting to check this out are: about 3 weeks ago I was walking down my hallway and suddenly the room began spinning as if I were on a merry go round. This only lasted about 4 minutes and then I felt fine. I didn't think anything of it..other than "What was that about"! Then yesterday I was sitting on the couch with my kids and all of a sudden my vision was blurry and I had double vision. This lasted about 5 minutes and then I was fine again!

I decided to call the nurse and she said the dr. would like to see me right away. My blood pressure was fine and he had me follow his finger to check my eyes as well as looked in my eyes. He doesn't believe it is my optical nerve but wants me to see an eye dr. to have them double check my optical nerve. I have an appt. with the eye dr on Tuesday of next week. He told me that we could wait and get the results of the MRI and then go to the eye dr.

Needless to say when he told me he wanted to do an MRI to check for possible MS I was not expecting that at all!!

After leaving the dr office and crying in my car:) I got to thinking about other things that I have going on and now I am even more scared! I had and MRI and saw a neurologist back in the late 90's for unexplained shoulder pain that would hurt so bad I couldn't move my arms to even get undressed or pick up my daughter. They tested me then for a bunch of horrible diseases and never came up with an explanation. And of course the pain went away and I wrote if off as stress.

I do still get shoulder pain as well as wrist, elbow, hip and ankle aches. I have been diagnosed with restless leg syndrome as well. I notice that the pain in my shoulder is more evident when I am stressed out!

I also had a few occasions in 2001 where my tongue would feel like it was going numb. I called my doctor at the time and they had no explanation for it and again that went away and I just forgot about it.

Now today I am stressed as all get out and scared out of my mind about what they are going to find on the MRI and my shoulder, elbow, wrist, thigh, and ankle are all bothering me on my left side. I am assuming it is because I am so stressed that I just can't relax and that is why I am achy today.

If you would please let me know what you think and if in your opinion it could be MS I would really appreciate it! I know I am like everyone else here and the part of not knowing is the worst!!!!

Thank you for time:)

Have a great day!!
Reply
 
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Rory26312 responded:
Hi

In order to diagnose MS or rule it out a doctor usually does an MRI of the brain with contrast (a dye) and of the cervical spine so you may need to get both done and check if your MRI tomorrow is with contrast.

I have no way of knowing if you have MS or not but it is no harm to have it checked out.

If your doctor still suspects MS after the MRI have him refer you to a neuro who specialises in MS for any further testing as this is a tricky diagnosis to make .

I'd love to tell you to take it easy and relax but I remember the process so all I can do is quate Flap and tell you to "breath"

Rory
 
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BodoJ responded:
Unfortunately, I had some of your same symptoms. Even this morning I am having some terrible pains and tremors too. I never suspected MS or anything like that, but my doctor did and after the MRI, he set me up with an MS Specialist that same day. Like Rory, I would love to say don't worry, but it really does sound like MS to me. But do not panic. Get with a true MS Specialist right away and he/she will get you on the right track with the right treatments. MS is not an end. It's simply a beginning to a different way of life. I will be praying that you don't have MS, but prepare yourself for anything. I hope you will repost later on and let us know what happens. God Bless and good luck.
 
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tmmmw responded:
hi tml,
i am really interested in your results. i have many of the same symptoms as you do and have suspected ms for a little while now. i have had the vertigo, dizziness, random leg and arm pain, eye pain ,as well as, the mouth and tongue going numb occassionally. my stomach dropped when i read your post. i have been to several dr who do blood tests and when they come back normal just blow me off. i am 35 and a mom of 2. this is scary stuff. please post your results. praying for the best for us both!
Tara
 
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tmmmw responded:
Any word tml1016?
 
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BodoJ replied to tmmmw's response:
Dear tmmmw,
Blood tests will not show MS. You must find an MS specialist for a diagnosis. They are the only ones with the information that a medical professional needs to make a diagnosis of MS. Going to anyone else is a waste of time and money. I can tell you now that I had the same symptoms as you (I was diagnosed in December). God led me to a great MS specialist and I was diagnosed with MS in a week. I had an MRI and spinal tap and both results showed MS. It is scary and frightening to think about having MS, but it's not the end. It's just a beginning to a different way of living life. Run as fast as you can to a Specialist and good luck.
 
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tmmmw replied to BodoJ's response:
Bodo J,
thanks for the response. i am sorry you do have MS but at least you can go from here and you finally have an answer. i know blood test wont show MS but i now know with all the "random" seemingly unrelated symptoms that's the first thing a doc should/would do. i went to my gp today and he said i had some legitimate concerns and gave me a referal. i hope to get in soon. i am just curious what some of your first symptoms were?
thanks again,
tara
 
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Jeffrey A Rumbaugh, MD, PhD replied to tmmmw's response:
Without a full evaluation, it is impossible to comment on a specific patient's case in this forum. However, I would say, in general, transient symptoms, which last seconds to minutes, would be unusual as a manifestation of an MS attack. An MRI is useful because it can show evidence to support, or argue against, an MS diagnosis, or it can show something suggestive of an alternative diagnosis.
 
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lovesweinerdogs replied to Jeffrey A Rumbaugh, MD, PhD's response:
Dr. Rumbaugh, what do you do if you have a patient with metal plates and screws and can't have an MRI? Is there another imaging solution? Also, what is it that they are looking for when they do the spinal tap?

TML1016, I'll pray for you also. Let us know how things go!

Dawn
 
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margpet1 responded:
Hi,
I believe I have MS and am trying to get a neurologist to confirm. Unfortunately, I have had two negative MRI results in the past 9 years and my symptoms have just recently worsened. It began with a pins and needles tingling in my face and then throughout my body. It was worse upon exertion/exercise. A few years later, I began experiencing muscle weakness, blurred and double vision and now I have painful tingling and numbness in my extremities and face and body. I do not have insurance right now and haven't had for 5 years due to the economy and low paying jobs. If you have insurance, research neurologists in your area and research the information on the web to bring to the doctor. 5% of MS sufferers show a normal MRI. It is a terrible thing when you can't trust doctors in this day and age to know these facts and disbelieve your symptoms. MS is treatable and I would suggest you go to websites for support like the MSAA who have helped me tremendously even without a diagnosis. Keep a journal of your symptoms and what activities you do that makes them worse. Hang in there.


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