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Leg Pain
whitefrazier posted:
My right leg from my hip down to my foot had been giving me constant and pain and burning for sometime now. I was diagnosed with MD in October 2010. I was started on Copaxone but did not tolerate it well and now I just began Tysabri. My first infusion ws yesterday. I hope this therapy helps as I have my reservations about the PML. I have been through PT for my mobility, balance, etc. I think I was expecting a miracle or more than I got from it. I got a good exercise program from my physical therapist. I am also now seeing an occupational therapist. My neuro says that the nerves have already been damaged and there is no reversal, but he can give me some medication to help with the pain and burning. It seems that the answer for all my symptoms is s new medication. I do not like taking a lot of medication for a lot of different things, but I guess in order for me to get some relief from the pain and burning I have to take something. I am just afraid of all the side effects and the interactions with all the other meds I am on and especially Tysabri. Does anyone else have this dilemna? What have you done? Help.
BodoJ responded:
Your letter said MD, but I'm assuming you meant MS. I'm afraid that there is not much help out there for those like us. And we either take the meds and hope for the best, or we take nothing and definitely get worse. The meds do obviously have side effects, but in the long run, I think it's better than the effects of the disease itself.
whitefrazier replied to BodoJ's response:
Yes I meant MS. sorry. You are right. I guess I will have to investigate some of the medications. Thanks.
Neil S Lava, MD responded:
Not all MS symptoms are permanent. Many symptoms can come and go. We usually treat the pain of MS with medication to make patient's more comfortable. It would be worthwhile talking to your doctor about trying something for your pain. Most of the medicines that we use do not interact with Tysabri.

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