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MS and Avonex
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Nancy04232004 posted:
Of those who use Avonex, how many of you still experience side effects after being on it for over a year? Have you found that it stabilized your condition?
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Rory26312 responded:
Hi Nancy

I have been on Avonex since my diagnosis eight years ago and only expierienced the side effects four or five times in the first six or eight months.

I swear by it ,I really believe it has been vital to controlling my MS . I have had five minor flairs in eight years none of which left any permanent damage.(touch wood)

I'm sure you know to watch out for depression as this is the one side effect that cannot be lived with, if it is effecting you ,you need to talk to your neuro as soon as possible.

Hope this helps

Rory
 
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Muzzkat responded:
Hi Nancy,

I was on Avonex for a couple years. The effects smoothed out after a few months. There were still 'hangover' feelings & headaches, an occasional night chill. The good news was that it was controlling any progression.

I have since went to Gilenya. It wasn't until I quit Avonex that I realized how much it was bringing me down, both physically & emotionally.

Of course, the specialists don't know how well the Gilenya will be for modifying disease progression. That being the most important issue.

Hope you get answers, Matt
They say: MS, you don't get it unless you got it. Well...I still don't get it! ;^)


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