Just looking for some guidance...
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Anon_238895 posted:
I am having symptoms, and have been on and off for a year or so. The first symptoms were lack of coordination (I fell down my stairs 3 times within 2 months) then slurred speech/stuttering followed my changes in my vision (blurriness, difficulty adjusting to close/far distances). None of theses occurred together but the one constant symptom was fatigue; I just couldn't get out of bed. Literally 20minutes before I had to leave for work, I would finally get up.
Saw my eye doctor first; no changes so I decided to see my family doctor. As always, because I am an ER nurse, he thought I was making too big of a deal. He did a few physical tests with the only abnormal result being Nystagmus with body position changes. He decided all my symptoms were related to my work schedule (12hour night shift which I've been doing for 4 years) and put me on Nuvigil (a sleep/alertness aid).
This was 4 months ago now... I continue to FEEL exhausted physically, but my mind is racing. I have multiple, quite painful leg spasms nearly everyday while sleeping. No further speech/vision problems but now my lower lip feels numb (like I'm drooling, but I'm not). To add to the mix my short term memory seems to have been affected now.
Basically I have one question: Do these symptoms sound familiar? Is this enough to request an MRI from my physician or just wait and see if my current symptoms subside as well? I am a white female, late 20s, live in the Great Lakes region but have no family history of MS but I also was diagnosed with Mono in college (nearly 7 years ago now) all of which I heard were possible "risk factors." Any insight/advice would be greatly appreciated.
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PAUL50726 responded:
Hi. Yes, those symptoms do sound familiar. An MRI may help to determine if you have MS. However, when I first went for an MRI because of numbness, nothing was detected. I had another MRI a couple years later and then I was diagnosed with MS. I would talk to your doctor about this.
 
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hackwriter responded:
Anon,

Since your symptoms have been chronic for several months, it's entirely reasonable to insist on more testing. Although the symptoms you wrote about are all consistent with MS, they could indicate any number of causes. It could take some time to explore all the possibilities.

If you are concerned about MS, try getting a referral to an MS specialist. Keep a detailed log of your symptoms, your history of childhood illnesses, and everything you can remember that seemed "off." Getting baseline brain and spine MRIs is a good idea--and having a neurologist evaluate them who has lots of experience treating MS patients is even better.

Your perseverance in this matter should bring you closer to some answers, good luck.

Kim
 
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SimGirl75 replied to hackwriter's response:
Thank you both so much for your advice. Just tired of feeling like this and not ok with having my concerns brushed aside by my doctor, family and friends. I will update as I find out more.
Betsy
 
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GypsyGirlGo responded:
Like the others mentioned, since you have relatives with MS I'd start with a neurologist who specializes in MS. The sooner you are diagnosed, the sooner you can start one of the ABC drugs to minimize progression. (being a nurse you know that)

See if you can get recommendations for a dr from your local MS Chapter. I went through 6 drs. before I found one who wasn't condescending but then he quit practicing so I had to start all over again:-) I started with numbness in my legs and muscle spasms but also had terrible fatigue (had been dx with chronic fatigue syn 3 yrs before the MS dx). The MRI isn't the best dx tool in my opinion. I had one which showed 0 lesions but had a spinal tap and evoked potentials which lead to the dx.

I know they say that living in the northern regions of the US increase the incidence of the disease however I was born and raised in San Diego with LOTS of sun so not sure whats up with that.

Good luck.

Gypsy