I have had M.S. for about 4 years now. Recently, when laying down for sleep, I have had a hard time trying to get my breath. It's almost as if I forget how to breath. Do you think I should call my doctor or no? I hate bothering him.
I agree with Kim. Better to be safe than sorry, ESPECIALLY when it comes to being able to breathe! Your doctor would much rather you call for nothing than you are scared to call and something serious happens.
Thanks for your Reply!
I hope you let doctors know. Breathing is to be taken with care. Web MD may have some info on the MS and breathing. I found some more info below National MS Society. Take Care Catibabe _________________________________________________ Respiration or breathing is primarily under the control of the autonomic or "automatic" nervous system—the part of the central nervous system that controls vital functions such as heartbeat and respiration without conscious thought. It is unusual for MS to affect the autonomic nervous system, and therefore uncommon for breathing problems to occur in MS as a direct result of loss of autonomic control. If breathing problems occur suddenly, it is imperative to see the health care provider immediately or go to the emergency room since this may indicate infection or some other problem. Weakness of the ventilatory muscles can begin early in the diseaseIn MS, the most common cause of respiratory problems is loss of muscle strength and endurance. Just as a person can experience muscle weakness in the arms or legs, weakness can occur in the ventilatory muscles of the chest and abdomen that are involved in breathing. And like weakness in the other parts of the body, weakness of the ventilatory muscles can begin to occur early in the disease course and gradually worsen over time.
Thanks to all that responded. I did contact my doctor. I have an appointment to see him on the 8th. He doesn't seem to think the breathing is a problem and said I shouldn't be concerned, but he wants to see me any way? I'll keep you all informed.
I ddi see my doctor. He was confused by what was confused by it. He wants my boyfriend to see if I stop breathing through the night, he is wondering if it's sleep apthany (can't even say it right so let alone spell it. He doesn't seem to think I need any further MRI's or treatments as of this time.
Sleep apnea is diagnosed with a sleep study that requires you to be monitored in a lab overnight. It is a disorder that makes you stop breathing for short intervals during your sleep and it isn't something you would be aware of as far as having trouble breathing upon awakening or falling asleep. You might be sleepy during the day or actually fall asleep at work or at the wheel.
If you want to investigate it further, you might see your PCP and inquire further about having a sleep study or seeing a pulmonologist for further consultation. Asthma is another thing that came to my mind. It is also possible for MS damage to affect our breathing, swallowing and coughing reflexes.
I think your neuro dropped the ball on this one. If your PCP is more motivated, you might go back to square one and push for more answers.
I hope you're wrong, but I will follow up with my PCP. The problem with that is, she keeps changing. Since I've been going to this clinic I've had 3 PCP's. When I see a new one, I have to go through the whole story of what's wrong with me. Tell them about all of my meds, cause for some reason they don't have it in their comps. So frustrating! If you know anything about MS, it makes it hard for you to communicate. So, with all of this communication that I have a hard time with, I feel the doctors don't understand what I am telling them. Any suggestions? I feel more comfortable with you then the doctors. Damn shame huh?
I hear you--though MS is a complicated thing and I've never been able to explain it in a haiku, LOL. (That's a poem set in three brief phrases in case you're not familiar.)
If I were to see my PCP about this and I saw a new doc, I'd first tell them I'm having some breathing issues and briefly explain what's been happening.
Then I would say I've seen my neuro about it and came up blank. She would then start flipping through my thick chart looking for why I'm are seeing a neurologist, LOL. She might, at this point, pull out her stethoscope and check my breathing.
I would then tell her I have MS and the neuro mentioned a sleep study. The doc might give her opinion about that, yea or nay. If the doc doesn't suggest doing that, doesn't suggest something else and says "keep an eye on it," I would then say it's been going on for X number of days/weeks, and though I'm not convinced it isn't MS-related because damage can affect breathing/swallowing, I'd be open to exploring other possibilities. Could it be asthma? Start throwing things out there and challenge her. If she asks about a history of panic attacks (grrrr...) say you have no history of it and you are certain it isn't emotional. Stay calm and persistent.
If you come up blank again, let us know. Sometimes we have to dig into more research and go back to the doc again. Keep a symptom log and bring it to the appt. Be specific.
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