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Managing Multiple Sclerosis - New videos and articles
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Elizabeth_WebMD_Staff posted:
You have asked, we have listened! Check out the new content in our MS Health Center -

Managing Multiple Sclerosis

See these three new videos -

And five new articles -

We hope these resources will be informative and helpful as you battle the symptoms and diagnosis of MS.

Let us know what you think -
Elizabeth
Reply
 
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hackwriter responded:
Elizabeth,

I perused the MS Health Center page and I think it's a good overview of symptoms and treatments.

But I don't see a link to the MS Health Center in the right margin of the forum page. I often tell posters to search for basic MS info right here on WebMD; so often they go right to the forum without doing any research. Having the link appear right on this page--and regularly posting reminders to look at it might get people to do more research on their own.

Thanks for posting this reminder, and I hope you'll do this more often.

Kim
 
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Graceonline responded:
Dear Elizabeth

Thank you for this posting. I did not know of and therefore had not perused the MS Health Center.

Now I am more informed on a reply I posted this week regarding genetic links - thank you.

I like Kim's suggestion re making this a link posted on the right hand page of this forum. Certainly would be easy to find for those of us who are new and don't stumble across for some time.

With the 10 questions to ask your doctor. I think the questions - do you have experience in working with patients with MS and if so, what is your experience are also good questions for you to consider adding.

The other suggestion is giving a thought to adding content regarding the history of MS since (as I understand it), that dates back to diary notes from the 1820's (Sir Augustus D'Este), to the the first pathological and anatomical investigations, through to the twentieth century. Such an overview in my readings has been most informative.

If I may put forward another suggestion. Content regarding MS being an immune ("allergic") reaction in the immune system to certain viruses - if this make sense. Perhaps somewhere with the genetic information? Not sure. Just a thought. It may also be covered somewhere else on the link already and I just have not found it.

I really love the notion of self help though as I have been wondering as a newer poster, how many people sit back and for how long - before the become a new poster - or if they don't become a new poster at all. Speaking for myself I sat back and 'surfed' responses for a spell before 'coming out of the closet' so to speak. To have the link on the forum page would have certainly have been something I would have used long before becoming a new poster, save surfing replies, when sometimes all you want, is to find the information from a direct source all by yourself.

Thank you for inviting comments and thanks for the link and content.

Regards

Grace
 
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Elizabeth_WebMD_Staff replied to hackwriter's response:
Hi Kim -

Thanks for the suggestions! I will update the Announcement box at the top of the page with some helpful links and work in a programming plan to post a discussion every couple months with links and tips.

Elizabeth
 
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Elizabeth_WebMD_Staff replied to Graceonline's response:
Hi Grace -

Thanks for taking the time to go through the links and make suggestions. I will forward your thoughts and suggestions up the chain!

Your observations about watching before posting are interesting and accurate (see my response to hackwriter for updates coming). We know many come to the community regularly and do not post. We also know it is difficult to find a warm, safe place to post your feelings, symptoms and frustrations and many just hang out for awhile before posting.

We hope our communities can offer something for all, posters and non-posters alike. Members here do a great job giving valuable, accurate, advice and support. Gotta love community!

Elizabeth
 
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Graceonline replied to Elizabeth_WebMD_Staff's response:
Dear Elizabeth

You are welcome and thank you for your reply (apology re my delayed response).

Forwarding my thoughts and suggestions up the chain! Impressive.

After a posting yesterday and today I have wondered if the site has ever had an on line 'debate forum' as such.

Not sure how or even if it would work, though thought I would put it out there for any comment you may have.

Regards again

Grace
 
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hackwriter replied to Graceonline's response:
Grace,

Have you ever clicked on the titles under "Announcements" at the top of the page? Those are general health debates--and they get nasty! Check it out, you'll be taken aback, I promise!

Kim
 
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Graceonline replied to hackwriter's response:
Hi Kim

I have now, though the current one is a little bland.

I shall continue to monitor.

How frequently do they change topics?

Thanks for the tip.

Regards

Grace
 
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Graceonline replied to Elizabeth_WebMD_Staff's response:
Hi Elizabeth

I have been reading hackwriters post etc and have some further thoughts.

I am not sure where to post the under though have decided here.

Now that I am working from the home page and not discussion page (thank you kindly for pointing this out) - I note the under.

Dr Rambaugh's last activity was 6 months ago and there are only 20 discussions since he joined on 28.06.10.

Dr Lava, with 199 discussions, also joining on the 28.06.10 - replies seemingly becoming more intermittently.

Both profiles read they are extremely busy and this community undoubtedly, as I do, value the contributions they make when they are able.

I also note information on on sponsors and sponsored guests under the expert directory.

My thoughts are:

(a) does webmd have access to sponsors or sponsored guests who may be able to assist in replies where Dr Rumbaugh and Lava are time limited?

(b) if not, is this something webmd can advertise for - perhaps this could also tie in with a posting from (I forget where now sorry) - regarding the use of other specialists like an MS specialist nurse perhaps

(c) I have read replies to hackwriter (thank you for advising) and agree re the page being cluttered and vision issues for pwms. Having had vision issues this past 1-2 weeks myself is the reason I inquired re is it possible to increase font size in replies. However, my observation when reading this particular thread in two different postings and then taking a good look at the home page - my thoughts are:

(ca) is it possible to remove the advertisements from the home and discussion pages to assist with decreasing the clutter

I assume they fund webmd though and this may not be possible?

(cb) can the expert profiles to the right top simply be merged to the expert directory on the left top - again from both home and discussion pages

(cc) I really love how the title of this discussion topic remains at the top

(cd) is it possible that before submitting posts, a review post option can be incorporated into the system

My reason for suggesting this, is surely that this will only serve to aid the ms poster who not only may be struggling visually, though also cognitively.

(ce) or perhaps an easier program option may be to increase the size of the reply box from the current (approx 5cm) to the option of a full screen reply box. This would enable us to see what we are writing more easily also.

(cf) preference I think though would be for option (cd)

On a personal note. I do find the screen 'busy' and thinks perhaps this may also be in part, why I have persisted with posting what may be considered some minor questions and difficulties. I expect I am not the only one in this category.

The replies that followed then made things so obvious for me I almost felt silly (truth be told I have felt silly).

This however, has left me wondering, it takes not only a 'personal comfort fit to post', but when you do experience difficulties, it may be hard for posters to feel or be assertive enough to forward their questions or suggestions.

For instance, how many have replied to your recent helpful posts with feedback? I do not mean for this to be rude, it is just an observation. Though as I am new here, this may be 'normal'.

Which just confuses me further, as this posting suggests 'we have listened' to posters hence the posting and related content. These requests must have come from somewhere and I would have thought that wherever they have come from, these same posters would be posting thanks or at the minimum some level of feedback.

I think it would be disappointing for those on the other side (implementing the changes/requests by posters) - to not receive feedback when issues raised are actioned/addressed by webmd staff.

Ooops, only 270 characters left so I had best be signing off (obviously when I post I am extremely verbose)

Thank you again for inviting feedback and it is great to be able to reflect on this post and know where to find it again, immediately.

Regards

Grace
 
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Elizabeth_WebMD_Staff replied to Graceonline's response:
Hi Grace -

Wanted to give the link for our debate community -

WebMD Community Talk Show

We have about 3 new topics each week. Check it out and feel free to weigh in on the topics (old or new) that interest you.

Thanks,
Elizabeth
 
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Graceonline replied to Elizabeth_WebMD_Staff's response:
Hi Elizabeth

Thanks for your reply. I had found these just the other day also.

I have also noticed changes appearing as per suggestions being out forward. Thank you for this.

The screen is slowly becoming less cluttered and links more easily visible.

Kind Regards

Grace


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