Multiple Sclerosis Community

Hi, Dot,

Yes, I've had that speech problem come and go, too. It is so odd, there is no rhyme or reason to it. I simply log these strange things and report them to my neuro during the next scheduled visit.

It can happen when I'm tired, or when I'm quite alert, and often when I'm overstimulated from socializing. It has happened while on a new med and so has been a side effect of that med--but it has also happened prior to starting any new meds. It has happened during a flare--but also during a time of stability. It never happens when I drink alcohol, though, LOL. I actually walk and talk better when I've had a couple of scotches!

This disease is pretty crazy. Never a dull moment

Kim

Yes! Wine is the only thing that helps! Thank God for that...I would hate to give up one of my greatest pleasures. Kentucky Straight Bourbon Whiskey does the job as well actually (while eating chocolate....sublime).



Okay...so I am not nuts...I swear unless someone witnesses my spazzo moments, I begin to doubt myself. Thanks for the confirmation.

Scotch...awesome.....

Yes, I get the speech thing as well, off and on, often for no apparent reason. My husband has learned that finishing my thoughts really doesn't help at all when I'm "word fishing." It just helps me forget what I was trying to say!

I also have recently, over the last few months, had "jittery" issues which are different from my other "trembling" issues. The jittery ones are more internal, like too much caffeine. This die-hard coffee drinker has cut way, way back on her caffeine and that seems to help.


I often get "the tremblies" in social situations ~ like I'm overstimulated ~ and sometimes have to leave. It starts with my hands shaking, and gets progressively worse. Recently, my right leg has learned to tap dance all on its own!

I also agree with the others, and often joke that I feel my best after a couple drinks (just a couple).

Seems like just when I have this all figured out and set a routine, another surprise pops up! Never a dull moment with MS! Keep your sense of humor...

Thank you ! Very validating to hear this from some one else (you and KIm...).

I just cam from my internist who agreed I should go to the MS clinic here, and is starting the referral process. He also told me my B12 is lower than the neurologist said and to start an oral supplement.

And, as odd as this may sound to a non-MS-er, I was so happy to be symptomatic in his office! My speech was all messed up and my right patellar reflexes were diminished.

It was my first appointment with him and he was awesome and listened to everything I said. Sucks that this is all happwenig, but great that he is taking me seriously.

And by the way Tilliedog...you described it very well...it is like being over stimulated or something and often like I am quivering on the inside but it is not always visible on the outside. It is definitely worse in stressful or social situations.

Thanks again everyone!

I do the same thing, just thought it was because, well I really don't know what I thought it was because of..I just know that I do that and it is usually when I have been talking for awhile.

I get real jittery inside and it then causes my voice to become jittery..I sometimes get that feeling when I have been standing too long and I start to feel weak and have to sit down. Bummer, but what do you do? Sometimes I just get that shakey feeling when sitting around.

Oh well, I guess it is just a part of it..

Judy

I'm glad I could help pharmacogirl. I'm glad you're going to a MS clinic too. I didn't know how lucky I was at the beginning of this adventure to just happen to fall into the lap of an excellent primary, who referred me to a great neuro (not MS specialist but lots of exp with MS), who after about a year referred me to an MS specialist...

readyfordx, you're not alone in this, although I know it seems that way sometimes. People really don't understand, even those closest to you, as much as they want to. My husband tries awful hard, and is getting there, tho. But as I said, just when we think we have it figured out something new pops up!

I almost feel like an old hand at this MS stuff compared to some of you... I think one of the best things I did during my first year was get involved in the online MS community, sites such as this. AND my sis-in-law got me the book MS for Dummies (which had JUST been released about a week before).

Knowledge IS power! And I love this one: I have MS. MS doesn't have me!

Take care!

oh, yeah... And I know what you mean to be symptomatic during your dr. visit. It really helps for them to see it. Sometimes I feel like if they can't see it they probably think I'm nuts! Now I know they KNOW I'm nuts, but that's not the problem! lol

HELLO HELO , YES I ME TO ME TO SO GLAD IM NOT ALL NUTS . I WAS HERE LONG TIME AGO TOO 10 YR AGO. OMG . DX. IN 02 . I CAME HERE ALSO. GOOD PEOPLE . HELPED ME . I STILL FEEL CAR MOVING WHN ITS STOPED. LOL LOL .OPPS GOT TO GO .
SORRY CAPS

TAKE CARE

OMG! I'm sitting here 4am 5 days out of a 14day stay in the hospital. I'm thinking nobody gets it and how alone I feel in this rollar coaster of a ride called MS. I went in mail to check and WebMD was there and deceided to read and there was your e-mail. Somebody gets it and there were the replies and like a brick hitting me in the head, ALOT of people get it and most important maybe I'm not so alone. When I signed up for Web my family said No you don't want to know what other people are going through because you might start to think you have symptoms not really yours and now here I sit a few yrs later and that feeling alone in this is starting to lift the more I read and it all started with your post. And god help me I have not only your symtoms Dot but many many of the replies that have posted to yours. I just hope there are people that are here that have as many of the health issues I have that complicate my MS.I want to jump off and start a question myself and not take up your time and space, but yes Dot yes I have the speech issues,its so hard to type because of the hand jerking and shaking nobody can see and things just falling out of my hands and the 15 pair of glasse because I never no what strenghth my eyes will be when I sit down in front of the pc and so much more Fatigue is not the word but Dot Thank you for your post you may have saved me from the Nut Hut LOL and I hope we may talk online more often if you can stand me after this tyraid excuse the spelling as for memory I have none. God Bless to you

No, you are not alone, MerryCarlin..there are many of us out here. I have found this site to be very encouraging in that it makes me feel like I am not alone but have much support.

This site has brought me much understanding and answered many of my concerns and questions. Don't ever let anyone tell you it is not good for you (I know friends and family mean well) but talking with other people experiencing the same thing you are is very supportive and no one can really understand without being in the same situation.

It will also help if you break up your paragraphs..for some odd reasons it is hard to read a long paragraph..have you also noticed that you find yourself wanting to watch 30 minute shows on TV rather than a 2 hour movie..how wierd is that..or is it just me.

Hope you feel better soon..Stay strong..God bless you.

Judy

HI MerryCarlin!


When I first found out about my MS I had to go online to learn as much as I could because, that's just me. I am the type of person when I get interested in something, I have to learn ALL about it AND I am an internet addict. What a combination!

When I got involved in the MS community, I started to think I was imagining symptoms because I was reading so much about them. As time went on, I realized it was more a matter of being able to put a name to a lot of the "little" things I had been putting down to aging, or other factors.

Then one Sunday morning my husband and I went out to breakfast. The restaurant was quite busy, and a lot of conversations going on around me, etc. you get the idea. All of a sudden my right hand started shaking and I could barely get my fork to my mouth without losing my food! Pretty freaky!

We asked for our check, boxed up the rest of my breakfast and got out of there! Hubby kept asking "do you need to go to the hospital?" And I was like, "no, let's give it a bit of time and see what happens."

You see, I had already read about that particular symptom, so I had a pretty good idea what was going on. I didn't like what was happening, and I was a bit freaked. But I was able to stay calm and deal with it. Another thing I had learned is: there is almost nothing about MS that requires immediate emergency room treatment.

Places like this are good because they help us feel less alone in an experience that can make us feel very isolated, and also because they help us to understand what's happening to us and maybe a little of what to expect.

I'm glad you're here, and I'm glad I found this site!

Barb

Wow how quickly time fly's by. It's been about a month since I've been off avonox and ampyra and I now think I was having a reaction to both.

Boy are you right about the ER I can tell you first hand. I have never went to the ER without being admitted. If I went every time something new was happening lately I'd live there.

I am finding relief on this site and that insanity is not another one of my symptoms LOL but oh is there so much to read which is hard when my eyes change from day to day. Thank you Lord for those dollar store glasses. Anyway thanks Barb for your time and look forward to speaking again. I have tons of questions..................Merry