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Attention Dr. Lava!! Can you offer any insight or point me in the right direction? Please?
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klawyer75 posted:
Starting in Sept, I have had many strange things going on. I have been to several different specialists, had so many labs and tests done that I feel like a human pin cushion. I am not any better and I STILL don't know what's wrong with me!!

It all started with what I thought was a tense/sore muscle between my shoulder blades. But it was so tender to the touch (even my skin) that I could not let anyone touch me. Then the pins and needles started. My upper back, neck shoulders and head feel so tingly all the time that I would swear they are on fire. I have had my arms and fingers turn cold, go numb and feel heavy. I get a creepy crawly feeling down my legs and at times I feel as though someone is stabbing mein the bottom of my feet with knives. I have broken out in hives and some really weird rashes. My joints in my hands, shoulders, elbows knees and hips sometimes ache so bad I can barely move. Other days they are fine. I have always been an active person, lately I have no energy to do anything besides stay in bed. My bladder has started giving me problems and I a mgetting weird "pressure" headaches that almost feel as though I am drunk. I have become increasingly clumsy.

I have been to a rheumatologist 3 times, a dermatologist once, an allergist, pulmonologist, and immunologist. I have had 4 trips to the ER and have been to express care multiple times. I am currently under the care of a neurologist who has done an EMG, normal. A spinal tap, normal. And I am currently awaiting the results of an MRI on my head and cervical spine that were taken this morning. I had MRI's taken back inn November and I was told they were normal. But, upon reading my medical records, I see that I have a hemangioma in the left lobe of my brain and several more in my spine. No one mentioned this to me or even expressed this as a concern.

If the MRI's come back normal, I really don't know what to do next. My quality of life is dwindling. I am beginning to feel like I am nuts, but I know I am not. I am not a hypochondriac. I don't take an Advil or even go to the doctor unless I am on my deathbed. I have been given 36 different meds by all these doctors without even getting a diagnosis. I am on nothing now after 5 months of continuous prednisone and my symptoms are worse than ever. HELP!!!
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Neil S Lava, MD responded:
This is obviously a very difficult problem. It sounds as if your physicians are doing all the right things. These symptoms can have many causes. I wish I could tell you why you're having this problem. If your physicians cannot give you an answer, it may be worthwhile going some place like the Mayo Clinic for another opinion.


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