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What if it is a misdiagnosis? MS Help please
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KauraC posted:
Hi,

I am still going o the doctor for many different procedures for my doctors to tell me if I have MS (Im a military vet that goes to VA hospitals). My problem... that they are trying to see "If I have MS" not "What is this girl sick with." I feel like I told them I had tingling a numbing... I have been in an out of the doctors offices since March, its may and they are still looking. I understand a Spinal tap gives more information, but the information used to confirm MS is not only common in MS. If I have MS, then I am okay living with it but I want to make DARN SURE that that is what I actually have before using any treatments. I am pretty sure my docs will stop after they get the results back.

It all started literally on the first day of my menstrual cycle, 2 cycles ago. Usually my legs get a little numb, as if to save me from the pain. I used to have horrid cramps, but not anymore since I changed my diet. So my thighs went numb, then so did my hips and stomach. Within a week, the numbness did not go away. It moved up to my chest then arms in a months time. now my left hand tingles and my right fingers are a mess. The middle, ring, and pinky are numb, the index and thumb hurt. Typing hurts, so does holding a mouse like I am now. Also, certain areas of my skin like my hands and feet or where ever is numb, becomes overly sensitive or exaggerates the feelings, especially to cold water... hot water makes it all feel better, but does not get rid of anything.

A month later, I was experiencing double vision but in my left eye... Its been a month and a half since then and all my docs have done is run tests, my double vision is now gone. During this time, about when the double vision began, I also ended up "coincidentally" having Pitoriasis Rosea (not sure of exact spelling) it basically means pink scaly skin... This was diagnosed visually. It did not itch, it was just there, spots that looked like ring worms, with no symptoms aside from their looks... the dermatologist said it would go in weeks... and it did, they have all healed now and have only left dark dry spots in their wake.

I have also had a constant dry but simple cough for years now... they keep saying its asthma, its not. I was active in high school, and the month I went to bootcamp, I magically develop asthma? I used to weight lift and run in high school, very convenient time for it to show. The cough is relevant in my opinion in that, I have coughed for 3 straight years, hourly, yet, the day I start experiencing all the "MS" like symptoms... My cough has gone.

Since February I have been dealing with whatever this is, and my right hand is in pain, I am an IT (Computer tech), I need and use these hands, and one is practically out of service, the other is tingly. Can someone please help me out with other possible diagnosis' to share with my docs for them to check along with MS or has anyone else with MS had the exact situation that I have?

Other notes:
We have been borrowing a car from someone since February and found a lot of black mold under the seats but I have to use the car to get to and from work for now. Is Black mold a possible cause? Another doctor brought up Shingles which I know nothing about... Please help.
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LKintner responded:
Don't let it go!!! Find an MS Specialist and go! Run!

I say that because (see my post under "to Avonex or not to Avonex, that is the question), I, twelve years ago was presenting to physicians, even a neurologist, with varied and "vague" symptoms. I was checked out and turned away.

When I had optic neuritis six months later and went blind over night in my right eye, finally I got everyone's attention! My first MRI showed a large load of 20 lesions. They and my symptoms have not appreciably worsened since then. I regained most of my vision, but if I, at 33, had known to be more pro-active and trust my gut instincts, I might not have lost any vision at all and subsequent negative changes in my life.

MS is best caught EARLY, and neurologists see the "3 clinical events" differently. Those are the usual basis of diagnosis along with a "positive MRI" (meaning one showing lesions in the brain).

Trust yourself. I knew innately that something was wrong with me/ my body. I knew it was "in my head" and it was, literally!


Don't give up until you find answers, and don't be intimidated. YOU know better than anyone what is going on with YOU!


God Speed!
 
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xperky responded:
Has anyone tested you for an autoimmune disease such as Lupus or RA? You might want to read about it and see if any symptoms match yours. Lupus can be difficult to diagnose, as is MS.

Sorry you are feeling so bad lately, and I sure hope you get good treatment soon.
 
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thestace responded:
Has anyone said or tested you for psoriatic RA? I have a friend that was diagnosed 4 years ago and her symptoms were VERY similar to what you are talking about. The pain, the eyes and the psoriasis which was on her elbows as well. It's worth asking. Good luck.


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