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Spinal Tap
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starburst29 posted:
Hello everyone,
I had my first spinal tap yesterday. It seems like everything is dragging out. I already had an mri with 1 brain lesion. However, my neurologist and ms specialist are saying it doesnt look like typical ms brain lesion. But the ms specialist said I probably have more lesions that arent showing.. In addition, one of my nerologist said if my my ST comes back negative he'll diagnose me with panic disorder. This is all very aggervating..What does panic disorder have to do with a brain lesion, bone pain, and tingling/twitiching in the face, arms and legs along with digestive problems. My main symptom is bone pain in the legs along with tingling electrical feelings and weakness. Does anyone else have bone pain in the legs and does anyone else exp delayed menstruation? I also feel dizzy and fatigue depending on what foods I eat early in the am.
Thanks
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hackwriter responded:
Dear starburst,

Fire the neurologist who diagnoses you with panic disorder, run like the wind. Forget all about that and stick with your MS specialist, who sounds a bit less idiotic.

Have you had a cervical spine MRI? That should be a standard part of your MS tests. The specialist has it right when he/she says there are probably lesions that aren't showing up on the scan. MRIs don't show the whole picture for a number of reasons.

Lots of us have heard that we don't have typical MS brain lesions and got the diagnosis anyway, there isn't much about each individual case of MS that is typical in the real world. An MS dx is made based upon your symptoms and history, physical exams that test your balance, strength, reflexes, coordination and sensation, MRIs, EPTs, lumbar puncture results, and after other conditions have been ruled out and it can't be anything else but MS.

Delayed menstruation can be a result of stress, hormone imbalance, perimenopause, or a number of other things. You might want to see your OB/GYN about that. We MSers do develop medical problems that are unrelated and we are often tempted to blame MS for everything.

Not sure why foods would cause dizziness and fatigue in the morning. Multiple Sclerosis can definitely make us dizzy and fatigued in the a.m., however. Add heat, or allergies, or a falling barometer, or another medical condition, MS doesn't play well with others. You'll definitely want to mention the food=dizziness fatigue equation to your doctor, hopefully they'll pay attention and give you some thoughtful explanations and advice.

Hang in there.

Kim
 
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starburst29 replied to hackwriter's response:
Hello Kim,
yes, I had mri cervical spine, no lesions were found. I feel like the ms specialist is playing games as well. These doctors down here in Miami tend to get mad when you dont have everything done in their center. I've already had 2 mri peformed with the neuro surgeon, however, the ms specialist wants me to get a third one because it wasnt done in his center.This is all rediculous! Having a third mri in one month is crazy and is a lot of money..MY symptoms first started when I developed a digestive problem and i fell into malnutrition for 6 months. I had a vitamin d defcient because of it, however, the doctors would not test me for vitamin c deficient, my tongue was completly white and thats when I developed widespread body pain. Since, I've been taking vitamin c powder my symptoms have improved by 50%. I go see my RA doctor tomorrow to have my ANA levels checked again. MY ANA has gone from negative to positive and back to negative...When I developed the malnutrtion thats when I started having food allergens and dizziness whenever I ate something early....I'll probably be tested for diabetes as well..
Thanks


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