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An_246017 posted:
What am I going to do......I have all the symptoms of MS. My nurologist wants me to either wait till the disease shows it self more to get a diagnosis or go to the Mayo Clinic. What am I supposed to do when some days I can get around and some days I cannot. I am trying to keep up the smiles but, my best friend thinks it is all in my 'head' and that hurts most of all.
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hackwriter responded:
Dear Anon,

It's always a good idea to seek an opinion from an MS specialist, and the Mayo Clinic provides that expertise. Though I have heard from several sources that they use more stringent MS criteria than other MS clinics, it's worth a shot.

So often our loved ones don't provide the support and compassion we need in the early stages. They aren't familiar with the disease, for one, and their denials might also come from a fear that you are changing into someone different than the person they have come to know.

Time can take care of this. When you do find out what is causing your symptoms, when you can put a name to it and get treatment, your relationships will be further challenged. All you can do is educate your loved ones about what's happening to you, tell them what you need from them, and hope they'll embrace it all in loving ways.

You don't need a diagnosis to have your symptoms treated. If you suffer from spasticity, pain, bladder and bowel problems, etc., there are meds that can make you more comfortable. If you haven't already, consider discussing a treatment plan with your doctor.

Please do keep us updated on your future appointments and progress. And feel free to post your concerns and questions anytime.

Kim
 
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shardinay27 responded:
would get a different neuro and get a second opinion.. one who will listen to you more and be more proactive for you instead of making you wait. I have had ones who specialized in MS, and that has been a big help to me.
 
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TeresaMae58 replied to shardinay27's response:
thank you so much for your help. My family dr. is sending me to a reumatoligist and having a sleeping study done. she said she has to get a lot a data under her belt before I go to the Mayo clinic, I will look for a MS specialist, but I live in a small town and I don't know where the closest one is.


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