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    Still nothing:-( and I dont understand l results
    avatar
    starburst29 posted:
    Hello everyone,
    I had spinal tap done . However, it said lp not suggestive of MS but muliple restriction badns present in serum and csf. No oligo-clonal bands. The ms specialist still says he doesnt know if i have it or not. I have facial pain, leg tingling, numbing, bone pain, twitiches and etc...And today my immunology doctor said I have a magnesium deficient and very low vitamin c levels... Can someone please enlighten me? What does multiple restriction bands mean?
    Thanks:-)
    Reply
     
    avatar
    hackwriter responded:
    Dear Starburst,

    I found a pretty detailed explanation from a few years ago on the medhelp MS patient forum site. One of their MS patient experts is also a doctor (quixotic1) who has posted an answer to a patient who had a similar situation as yours:
    http://www.medhelp.org/posts/Multiple-Sclerosis-MS/Question-about-wording-of-CSF-Results/show/860183

    And maybe Dr. Lava will give you his two cents this Friday as well.

    Kim
     
    avatar
    Neil S Lava, MD responded:
    We do a spinal tap to look for evidence of immunological activity occurring within the central nervous system. When we do a spinal tap we compare the results in the spinal fluid to the results in the blood serum. To support a diagnosis of multiple sclerosis one needs to have oligoclonal bands in the spinal fluid but none in the serum. It sounds as if in your case there was evidence of bands in the serum and in the spinal fluid. Therefore these changes in the spinal fluid just reflect what is going on in your blood and does not mean that there is immunological activity within the central nervous system.
     
    avatar
    starburst29 replied to Neil S Lava, MD's response:
    Hello,
    I a still confused, does this mean MS or something else? In addition, I just received results back from my immunology doc I am deficient in magnesium rbc. However, when I take magnesium it incresases mt tingling. I also found my vitamin c levels to be at the cut off for deficient as well along with very high levels of vitamin b12,, the level is 1182. Do you have any of you can give me on this? Im a vegitarian so I do not understand why my b12 levels are so high.
    Thanks you so much:-)
     
    avatar
    starburst29 replied to hackwriter's response:
    Thanks Kim,
    the Ms specialist said he's having a hard time with me because I have so many things going on at once. Hiatal hernia, bilateral ovarian cyst, neurologial pain, bone pain and etc... I dont understand how I can be progressive ms and he thinks I might have a-typical ms...?? This is what he said if my leukemia test come back negative..


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