W e got results back for my son, age 26, MRI...yes MS..still in shock. This is so new to us. He had symptons of a mild stroke. He worry for he does not have health insurance after turning 25, our HMO had to drop him. He's a senior in college, one yr old daughter, my first grandbaby...we had to pay out of pocket for his doctor visits and now we are up against trying to find information on helping us take care of his infusions and physical therapy. Im online all day, nothing has presented itself to me yet. I know there is HELP out there for my son. He is so amazing, dealing with the pain of barely standing and walking (plus other symptons) for over a full semester knowing he has no insurance. It hurts my heart to know he has been struggling thru this. Any information for assistance would be greatly appreciated. I have asked the doctor that diagnosed him for more info...nothing yet. I want to be able to stay strong for my son so he would not worry so much. I would love to know of a good Neurolgist in the Dallas/Ft Worth area and can be attentive and informative for us. I dont want my son to feel this is the end of his life. ANY HELP OR INFORMATION WOULD BE GREATLY APPRECIATIVE. God Bless
Yes, there is help out there for your son, and unfortunately it does take a bit of research to find it.
All pharmaceutical companies that manufacture MS disease-modifying therapies have patient assistance programs for uninsured patients. They will furnish the drug free of charge. Your son's neurologist should have given you literature with the drug company patient services contact info, but you can find the contact info on their website, too. These patient support services can help guide you to other resources, too.
Another resource for financial assistance is NORD (National Organization for Rare Disorders), which will also cover the cost of expensive MS drugs. Find their website for application info.
You can also contact your local chapter of the NMSS (National Multiple Sclerosis Society), the MSAA (Multiple Sclerosis Assoc of America) and MSF (Multiple Sclerosis Foundation). Search their websites for contact info. Staff will help you find resources in your area.
For doctoring, you'll need to research your county community health clinic. If your son meets the income guidelines he can receive free care. Same goes for private charity clinics, both secular and religious. I've used those myself when I was uninsured and unemployed. I even used one outside my county, so if your city/county is short on charity clinics, you can search outside your immediate area, too.
Catholic Hospitals have Care for the Poor programs. If you use a free clinic and the doc sends you to a hospital for an MRI or blood work, those hospitals with charity programs will provide those services free of charge.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
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