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Initial Diagnosis for MS
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An_247228 posted:
Last night, I saw an intereview with Mitt Romney's wife and she discussed her MS issue. I never really knew what it was just heard thru media different people diagnosed with it.
It was like being hit with a hammer...she was describing my life.

I researched immediately and found so many symptoms that I had seen so many specialists for over the past many years - from extreme onset of blurry vision to hand tremors. Each specialist had a different diagnosis from ADD to depression; nerve blocks from auto accidents; myfo facial treatments; pain management for migraines, nerve damage in neck and back, left arm numbness down to hand; gastro problems from scars on intestines from multiple C Sections for bowel issues; a macular specialist to rule out mac deg which my mother has; to having a foggy thinking issue for ADD (vyvanse); to just being lazy, can't work, can't EVER sleep to a shrink last week wanting to admit me to psych hospital for month for mental depression which I didn't follow through with but made me start asking myself WHAT IS WRONG WITH ME?
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swampster1952 responded:
Hello An,

I can only assume that out of all the specialists you have seen not a one of them were specialists in MS?

When you go looking for a neuro, don't just settle for whom ever is closest to you, but look for one that specializes in treating people with MS. If you have to go out of town, (or even out of state, I live in Alaska but fly to Seattle twice a year to see my MS doctor) then do so.

Something obviously is not working with your body. Just remember that we are our own best health advocates so don't depend on the medical community to have your best interests at heart.

Come back and let us know what you find out, okay?

Dave
 
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tomballcowgirl50 replied to swampster1952's response:
Never even knew what MS was exactly until I saw tv show. That's why I was frustrated that no other MD over years even thought about putting the symptons.

May not even have that diagnosis but awfully ironic that it seems probable. Now that I have researched a bit and talked to other individuals about MS; seems the diagnosis is so vague and sometimes a "catch all" like Lupus became.

Is there a definitive way to test for sure?
 
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swampster1952 replied to tomballcowgirl50's response:
Hello Cowgirl,

The short answer is no. To get a diagnosis of MS one usually has to have lesions in the central nervous system which an MRI will reveal. Then you may need a spinal tap to look for oligoclonal banding and then you throw in on top of that your clinical symptoms.

Get thee to a MS neurologist and get yourself checked out!

Dave


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