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Do anyone have any suggestions?
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Lovelyhzleyes posted:
I'm having problems dropping things more often than I like too and my doctor doesn't take it too seriously. There's more symptoms like, shaking and tremors when relaxed or active, stiffness and pain, fatigue most of the time, unexplained weakness in arms, hands, and legs sometimes, sometimes urine incontinence and most times constipated, and dropping things often (of course) and trying to grab something and failing making me keep trying multiple times till I do get it. I was seeing a great neurologist and had countless MRI's all showing white matter in my frontal lobe and she can't tell whether it's MS or a stroke. I would see a new doctor, but location is an issue. This irritates me greatly because I feel as if I'm not getting a straight answer. I am on a online college and it requires a lot of typing. A lot of times its a problem because my fingers will not do what I want them to do (which takes me many hours to complete an assignment). Does anyone have any suggestions? I'm irritated and scared.
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hackwriter responded:
Dear Lovely,

If your neurologist has ruled out other conditions and is still spinning her wheels on the stroke vs. MS question, then you need to seriously consider seeking out an MS specialist, even if you must travel a long distance to see one. The extra effort, time, and expense would be worthwhile in the long run.

If indeed you have MS, it's important to get treatment as early in the disease process as possible. Also, if you haven't already, you can ask your current neuro about medications to treat your tremor, stiffness, pain, fatigue, and urinary symptoms in the meantime.

I hope you will soon be given some answers and can get the treatment you need. Feel free to pop in and ask questions or write us about your concerns any time. Hang in there, you'll be okay.

Kim
 
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Lovelyhzleyes replied to hackwriter's response:
Dear Kim,

Thank you for replying. My name is Tanya. I will definitely look for a specialist when I move back to Arizona. I hear they have great specialists in AZ. Las Vegas, not really. I know your not a doctor, but what is your opinion. I do not have a current neuo due to him billing and double billing insurances his company didn't accept. So I'm kind of in a hard spot right now until I move this Oct. I will pop in from time to time and will post an update when I get results. Thank you once again Kim. I'm a little more calmer than my first post lol.

Tanya
 
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hackwriter replied to Lovelyhzleyes's response:
Dear Tanya,

You'll have to do some research, there are plenty of MS specialists throughout the state. If you'll be living near a university medical campus, that might be a good place to start, too.

Here are two links to some lists of neurologists and MS specialists, including the Mayo Clinic in Scottsdale:


http://www.mayoclinic.org/multiple-sclerosis/scttreatment.html


http://www.suggestadoctor.com/doctors_list_az_160_arizona_neurology.htm

Kim
 
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hackwriter replied to Lovelyhzleyes's response:
You can also contact the National Multiple Sclerosis Society for a list of MS specialists in Arizona. Though they can't endorse a particular doctor, they can provide you with contact info.

Kim
 
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Herb Karpatkin, PT, DSc, NCS, MSCS responded:
I would also suggest you contacting an occupational or physical therapist who specializes in hand function who can give you strategies for addressing the difficulty you've had with typing and object manipulation. You can find one using the following link:
http://www.htcc.org/locate/index.cfm
 
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Lovelyhzleyes replied to hackwriter's response:
Thank you Kim. It turns out I'm not able to move at the time. So now I need my Doctor to find a good neurologist here in Las Vegas. I'm getting more and more upset with constantly dropping things. Very frustrating for me. I feel that every time I take 2 steps forward, I wind up taking 10 steps backwards. I will keep you posted if and when I found out anything.

Tanya
 
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Lovelyhzleyes replied to Herb Karpatkin, PT, DSc, NCS, MSCS's response:
Thank you Herb. I will definitely check the sites out that you and Kim have provided for me. I will let you all know if and when I find out whats going on. )

Tanya
 
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Anon_24822 responded:
Read your description of your problem, It is probably MS I have all the same problems was diagnosed in 2005 Good luck with the doctor, I was having problems since 1998 it took them that long to figure it out. YOU need to be the one to push your doctors, typing problem try DRAGON speech you say it it types it. Stiffness, and hand tremor are common, there are Meds for stiffness. Fatigue Meds work a little, hopefully your not dealing with Heat issues But we are going into the winter months, from the Chicago area I used to love the heat now MS and heat don't go together your body gets hot your body shuts down. There are procedures that have been shown to work but we have the FDA and until they approve it we wait. Don't worry a lot of people have this,Stay mental focused on You, and you will get through what ever the disease does. Good luck with docs.
 
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fowler responded:
I have some of the same problems and I agree with the other person that said you need to find out if it was a stroke or ms so they can get you on some meds if it is ms to slow the progression of the disease . I go to the shepard center in atlanta 3and 1/2 hours away from home but it is worth it because I am finally getting someone who will listen and try to do something about the syptoms like fatique and balance and headaches and stomach issue and etc .
 
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doggsbone replied to Lovelyhzleyes's response:
good luck tanya . dont forget you are not alone we are all here too
 
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doggsbone replied to Anon_24822's response:
agree probably ms but now days ms never travels alone. any good reccommendations for fatigue meds. i am so tired all the time no matter how much rest i get
 
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doggsbone replied to fowler's response:
will have to check out shepard center thank sounds good thank you for the idea
 
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caregiver41 replied to doggsbone's response:
Yes have MS doctor put me on Provigil works pretty well.
 
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doggsbone replied to caregiver41's response:
provigil sounds promising thank you so much will talk to neuro. hope you are doing well. found out anything out yet about balance, headaches, stomach ect? please let me know


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