Skip to content


    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!

    Yours in health,
    WebMD Message Boards Management

    Possible MS...need to vent
    EMANDMSMOM posted:
    Hi all,

    I have had "symptoms" for over 10 years and no definite diagnosis. I have tremors...which have slowly progressed, For the past 5 years I have developed extreme heat sensitivity. when i was initially tested 11 years ago, I was experiencing tremors, numbness in my left arm, and left side of my face. I had several MRI's(C spine and brain) C-spine was OK, brain showed 6 lesions. I was tested for Lyme's, vitamin deficiencies, and had evoked potential testing done. I was told at the time that I did not meet the criteria for an MS diagnosis, but it was possible that this was the problem with me. Now, I have increased tremors, heat sensitivity (this has gotten worse), spascisity in my right arm, and the facial numbness is back. I am also experiencing some muscle pains the past few days. I am scheduled for an MRI in the beginning of March, but am scared to death that by waiting, I may being getting worse without any treatment. I have to wait until next month due to insurance deductible being met...its EXPENSIVE to be sick! Researching over the past few days, I am torn at seeing information that sounds so much like me pointing to MS, part of me happy(?) to possibly have a diagnosis, and part of me terrified of what having MS would mean. Anyway, I wanted to post, because maybe people who are reading this know the boat I am its really tough to explain to people who aren't in the "been there done that" category.
    hackwriter responded:
    Dear EM,

    I know what you're going through, waiting for a dx is the toughest part. It will be a relief once you know for sure. And being scared about your future is normal, I was terrified for the first three years after that initial attack. But I got over it. Life doesn't end, it's just a series of adjustments. Finding a support source like WebMD helps a lot.

    I waited for six years after my first attack for a diagnosis because I had not met all of the criteria. That was six years without treatment. I don't know if it made a difference, though, I have a feeling it didn't. My second attack happened five years after the first one, I was stable all that time without treatment. Of course, the inflammation is still occurring even if we are not symptomatic or in a full exacerbation. But it's impossible to say whether I would have flared after five years even if I'd been on treatment. After I started Copaxone, the next flare happened five years later. So, with or without treatment, my pattern is still one flare every five years.

    Some docs will diagnose Clinically Isolated Syndrome (CIS) when a patient shows signs of MS but has had only one flare. This is one way to start a patient on MS therapy without a diagnosis--but not every neuro will do this.

    I hope you'll get some answers in March one way or another. Please let us know.


    Featuring Experts

    Stephanie knows multiple sclerosis as a patient and as a nurse. Stephanie was diagnosed with multiple sclerosis in 2013. Shortly after being diagnosed...More

    Helpful Tips

    the walking drug, ampyra
    was diagnosedwith MS in 2000. my walking has been getting harder to do but i was still able to work. i recently had an exacerbation of my ... More
    Was this Helpful?
    52 of 63 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.