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Scared to death! (Optic Neuritis and Multiple Sclerosis)
Antivirusabdo posted:
Hey all,

okay here's my story, from a month i woke up finding a big blind spot in my right eye without any pain or headache or any other symptoms, i ignored it for 3 days then when i didnt find any improvement i went to the ophthalmologist and he told me that everything's fine with my eye there's nothing wrong and then he requested a visual field and he saw the blind spot there, then he told me that's "probably" an Optic Neuritis so transferred me to a neurologist who requested a MRI+C which was normal too, then he said also that's "Probably" Optic Neuritis but he wasn't sure because he didn't see the Inflammation through the MRI and i started to take steroid pills (40 mg) per day but i wasn't so convinced that it's an Optic Neuritis because i didnt find my self suffering from its symptoms specially the pain and headache parts, so i went to another ophthalmologist who requested an "OCT" and he told me if there is any inflammation it will appear in it, i made it and found nothing also, the OCT was normal then he told me maybe there was a very Simple inflammation and it's gone but it takes up to 6 months to recover and to improve the sight and he advised me to continue on the steroid pills, now i am on steroid pills since 3 weeks and i didnt find any improvement, the blind spot is the same (20% of my right eye) but from reading about it i knew that in 85% i won't recover my sight again but i kept hoping that maybe i am from the 15% that do recover their sight after an Optic Neuritis
what really now scaring me, what i read about the relation between Optic Neuritis and Multiple Sclerosis socially if you took Steroid pills (oral) as a treatment
specially i do suffer from problems in my immune system (Psoriasis) already, i really can't sleep from thinking about that and MS specially i read about many topics and many people suffered from MS after an Optic Neuritis and also many people suffered from Optic Neuritis many times again after treated from it!
am really so scared and don't know that to do, i reduced the steroid dose from 40mg to 10mg because there's no inflammation now (if there was in the past!)
i cant stop reading and thinking about it, and how my future gonna be
sorry for the long topic but i wanted to explain everything to you

Thanks A lot in advance

Antivirusabdo responded:
now how can i stop thinking about that? the numbers are very scaring

is there anyway to reduce the risk?
hackwriter responded:
Dear Antivirus,

According to the Mayo Clinic link below, optic neuritis can be caused by conditions other than MS. Autoimmune diseases such as Lupus and Neuromyelitis optica, and non-autoimmune conditions such as bacterial/viral infections, certain medications, and cranial arterial inflammation can cause partial temporary or permanent blindness. See the full article below for more info:

Your anxiety is understandable--but it does take time to determine the cause of your symptoms and to find out whether your sight will return to normal.

An MRI won't always capture the inflammation, unfortunately. Tests for MS include brain and spine MRIs, a neurological exam, lumbar puncture, and evoked potentials. If you have another episode of worsening symptoms, these tests will likely be repeated. It can take a long while to rule out all the possible causes.

If your symptoms worsen or you develop new symptoms, see your doctor right away. I hope it isn't MS, but if it is, you have us as a resource for support and information. Please keep us updated about your symptoms and future testing.


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