Dear mom5xover,
Your history of mono and vitamin D deficiency should be of at least some passing interest to your neurologist, especially in light of your symptoms. Those two conditions suffered early in life will raise a person's risk for developing MS, according to some reputable studies.
If you had listed your symptoms without those two pieces in your medical history, I would have said that your symptoms are nonspecific, meaning that any number of conditions can cause what you are experiencing and MS is probably not what you have since it is so rare. A degenerative spine problem such as stenosis, for example, could also cause your symptoms. Having a spine MRI could reveal a host of things: demyelinating lesions, tumors, herniated discs, arthritis, stenosis--things that could be making you feel the way you do. At the very least, this kind of test could rule out a bunch.
If indeed your neuro's reason for no MS testing is solely because you aren't exhibiting the motor dysfunction he sees in his other patients, then either he is not very well-informed about how MS can manifest itself or he has other reasons for not doing the tests.
You might consider seeking out another neurologist for a second opinion. Moreover, if your narcolepsy meds aren't effective, you must tell the prescribing doctor about it so he/she can either adjust the dosage or try a different med. Treating and tracking your diagnosed conditions is important, as this will be valuable information to a neuro. A narcolepsy misdiagnosis, for example, could be more easily revealed if you have a record of treatments that have proven unsuccessful.
It's up to you to take charge of your care and seek out a doctor who will listen to you; it is also the responsibility of the patient to report to a prescribing doctor that a medication is not working. They cannot investigate it if they don't know that there is a problem.
Please do let us know what you decide to do and update us on the result. I hope you don't have MS, but if you do, there are lots of resources that can help ease your journey.
Hope this helps.
Kim