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Need help...
An_250912 posted:
I have been trying for three years to try and find out whats wrong with me I have numerous symptoms that are causing me to not be able to take care of myself or my child very well. They are Hairloss, flaky skin, extreme exhaustion sleeping 5 hrs a day and 8-10 at night, excessive sweating and drenching night sweats, depression, heart rate changes, weight changes, no sex drive, leg spasms-painful uncontrollable stiffening of muscles in left leg, memory loss, no energy, joint pain and swelling, back and hip pain, feeling faint, headaches everyday, have lost peripheral vision in left eye twice, have had to pull over and stop driving because of leg spasms, trouble writing sometimes because of shaking, and I think i have been experiencing the ms hug I cant be sure though. My doctors have sent me out to see a endocrinologist because I have a thyroid nodule which is not effecting my bloodwork, and a cardiologist for heart rate changes but does not seem to be interested in the rest of my symptoms. I am at my witts end I need help!!!!
hackwriter responded:

It's good that you're having thyroid and cardiac testing since your symptoms can be caused by many other conditions besides MS. It's not a waste of time to establish baselines for these things.

However, your desire to see a neurologist is entirely reasonable and you've got to assert yourself to get that referral. The ideal referral would be to an MS specialist.

Testing for MS includes brain and spine MRIs, a lumbar puncture, evoked potentials, and a neurological exam that tests your reflexes, strength, coordination, balance, and vision. You should also have a battery of blood tests to rule out Lyme disease and other conditions that cause the same kinds of symptoms as MS. An MS diagnosis is largely a process of elimination and can take time to pin down.

I hope you'll let us know the results of your testing and whether you've been successful in obtaining a neurologist referral. Please feel free to come back any time to vent and ask questions, we'll do our best to help.

lovesweinerdogs responded:
Hi An, Dawn here. I wanted to let you know you are not alone. I also developed thyroid nodules, one now large enough to interfer with movement when I turn my head. Mine also does not affect my bloodwork, but I have recently developed discomfort in one lung. Reading on this, I learned that thyroid nodules are sometimes accompanied by lung lesions. The doctors say they are unrelated.

I also kept after them about the heart issues, and they finally diagnosed Atrial Fibrillation and Tachycardia. This determination took them about 2 years.

I sometimes despaired they would get to bottom of this before it was too late. I became very close with the Patient Rep. at the hospital I use--they were very helpful.

Hang in there! These folks here at WebMD really care and there's a lot of experience that you can fall back on. Take care!

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