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Neurogenic Bladder
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Anon_172495 posted:
Hello,

To make a very long history very short (lol), I was in normal health (weekend athlete) until I awoke one April morning in 1989 with widespread tingling in the right side of my face and arm - a trip to the neurologist found in sign of a stroke, and said an MRI could rule out MS but I never had one (fear of the MRI tube).

The tingling subside after a few weeks, but returned every spring and that remained just a nusiance symptom until September, 1999, when I seemed to sprain my back when putting up hurricane shutters - but also experienced sudden tingling in both legs.

A trip to the orthopedist did not find any disk problems - but he asked me if anyone had every said I was born with Spina Bifida because he noted that all 5 vertabre were involved (my answer to him was no, because when born the major fear was polio)...

He said that it should not be a problem, as long as there were not symptoms, however, in 2000 I began to notice my abdomen would enlarge in size one day and return to normal days later, and in error self-diagnosed that with bloating and perhaps middle age spread, and that continued off an on until 2010, when my abdomen increased in size - and stayed that way.

I began to feel ill in the Spring of 2011, and after a blood test was found to be in renal failure due to extreme urinary retention (3,000 cc's) but thankfully God intervened and the next morning the doctors walked into my room smiling to say that my blood was returning to normal and I was allowed to go home - with a foley catheter, and to this day, 2 years later, I'm no longer able to urinate on my own due to a diagnosis of neurogenic bladder , but continue to have tingling in the right side of my face, 24 years later, so it seems my neurogenic bladder is either due to Spina Bifida or MS, and hope to make a trip to Mayo Clinic next month to make a final determination (I've been putting it off for a variety of personal reasons)...

P.S. Several urodynamic studies have all shown poor nerve function, and to this day I cannot determine how full my bladder is when a plug is inserted into my foley (I was a club long-distance bicyclists for 15 years and still cycle 10K distances with a special saddle)...
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Ocala2 responded:
Ugh - I forgot to read my topic before posting and found more than a few typos but can't find a way to edit, so below is the edited version:

******************

To make a very long history very short (lol), I was in normal health (weekend athlete) until I awoke one April morning in 1989 with widespread tingling in the right side of my face and arm - a trip to the neurologist found no sign of a stroke, and said an MRI could rule out MS but I never had one (my fear of the MRI tube).

The tingling subsided after a few weeks, but returned every Spring and that remained just a nusiance symptom until September, 1999, when I seemed to sprain my back when putting up hurricane shutters and experienced sudden tingling in both legs.

A trip to the orthopedist did not find any disk problems on a normal x-ray - but he asked me if anyone had ever said I was born with Spina Bifida, because he noted that all 5 vertabre were involved (my answer to him was no, because at the time I was born the major fear was polio)...

He said that my birth defect should not be a problem, as long as there were no symptoms, however, in 2000 I began to notice my abdomen would enlarge in size one day and return to normal several days later, and in error self-diagnosed that with bloating and perhaps middle age spread, and that continued off and on until late Spring of 2010, when my abdomen increased in size - and stayed that way.

I began to feel ill in the Spring of 2011, and after a blood test was found (on the first day of Spring) to be in renal failure due to extreme urinary retention (3,000 cc's), but thankfully God intervened and the next morning the doctors walked into my hospital room smiling to say that my blood was returning to normal and would be allowed to go home - with a foley catheter, and to this day, 2 years later, I'm no longer able to urinate on my own due to a diagnosis of neurogenic bladder , but continue to have intermittent tingling in the right side of my face, 24 years after that began one morning, so it seems my neurogenic bladder is either due to Spina Bifida or MS, and hope to make a trip to Mayo Clinic next month to make a final determination (I've been putting it off, partially because several local urologists have all said the neurogenic bladder is likely due to Spina Bifida (S3, S4, S5)...

P.S. Several urodynamic studies have all shown poor nerve function (they said my spintcher muscle does not open to allow urniation), and to this day I cannot determine how full my bladder is when a plug is inserted into my foley to allow the bladder to fill naturally (I was a club long-distance bicyclists for 15 years, and still cycle 10K distances with a special saddle)...
 
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Ocala2 replied to Ocala2's response:
Oh - if it helps the medical staff reading this topic, also at approximately the same year I began to get an increase in abdomen size (2000), I also began to have swallowing problems when it comes to my esophageal sphincter muscle opening very slowly, which makes eating a scary adventure at times. Some days there are no symptoms, and on other days others it makes me feel like I'm choking for about 30 seconds, until the muscle slowly opens...

I was examined last year locally by an MS specialist, and while he does not believe MS is the problem, he wants to let Mayo Clinic test me further before making a final diagnosis...

My family doctor said I'm like the TV show "mystery diagnosis", but all joking aside x-rays don't lie when it comes to my spinal birth defect, and the many nurses I know (I volunteered for many years at a local hospital) said it's a miracle that my Spina Bifida remained dormant for over half a century, and that it seems I'm in that small group of people who suffer from delayed birth defects later in life (I always use the late actor John Ritter as an example because we were about the same age when the dormant problem reached a crisis)...

But - the many doctors who've examined me locally disagree on the extent of the Spina Bifida and it's relation to their Neurogenic Bladder diagnosis (which I've learned is a general term for a bladder condition caused by a neurologic problem of unknown origin)...

Sadly, a few said the cause may never be found, and my only option is an SP tube or my joining the disposable catheter club, which I cannot tolerate physically or mentally...

Sorry to go on but as you can see it's a whale of a problem with no obvious answer, other than for some reason my poor bladder just doesn't work the way it should any longer and I've been unable to urinate for the past two years...

P.S. Again, I posted it here because I've read that 55% of all MS patients have bladder problems, including my doctor's diagnosis of neurogenic bladder...

Thanks...


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