I took CoQ10 for several months early in my disease--I have RRMS--and felt neither a positive nor negative effect.
It, along with some other antioxidant substances such as green tea, is considered an immune-stimulant. That means it has the potential to stimulate certain immune cells that, theoretically, might trigger an attack--but only theoretically.
The medical community is not of one mind on whether MS patients should take it. Part of the reason is that nobody knows what causes MS, and partly because there have been no large double-blind placebo-controlled scientific studies done yet. If you ask five doctors to weigh in on CoQ10, You'll get five different opinions. They will either warn you against it, tell you to try it and see how you feel, agree to cautiously monitor your dosage and help with QA, confess that they don't care one way or another, or profess their ignorance of the matter and suggest you call the NMSS for advice.
Another consideration is that no two MS patients are alike in how they respond to therapies and supplements--so we can let doctors off the hook about their confusion. There's just no way to predict how CoQ10 will affect you personally.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
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