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What if you dont get treatment ?
Anon_157363 posted:
I was wondering and trying to find more information about What happens if you never get treatment with this Condition, Will it be so bad that you can't bear the symptoms anymore or will it just burn out or will it cause a secondary symptom to cause death. I have a very high tollarance for pain and all these other minor symptoms are really just a nuseance but tollerable. and yes sometimes feels like torture but they eventually work themselfs out to be tollerable again.

I was at first Very worried about the dizzieness and off balance and slurrd speach, blurred vision, Swollowing issues,Numbness ,tingling and buzzing sensations stuff, but now I look at it this way. This is what an alcholic must be trying to feel and to achive this feeling every day, I have it and dont have to drink a drop and still be very consious and aware of everything that is going on. Can't be that way if your drunk...This is pery cool really.

The only real issue is the E>D problem, that I would really like to get back. Not just to be able to get one but to get the other stuff that goes along with it, the before, Arrousal and after, things that are some how gone now. The drive i guess is whats lost here.Any way It this something that really needs to be treated or can I go without and not have to worrie about that?
hackwriter responded:
Dear anon,

Our disease-modifying therapies were designed for the sole purpose of delaying the progression of the disease and to reduce the number of flares and new lesions. Although we can't predict which ones will be effective for us, I believe we owe it to ourselves to explore some of these drugs in case they do help. Taking them now might keep us out of a wheelchair 15 or 20 years down the road.

You won't die if you decide not to take these therapies; your disease course might not be affected at all, it is impossible to predict what will happen with and without this treatment. All we have to go on is how the drug performed compared to placebo in the clinical trials, as well as the post-marketing data. Many of us take a few therapies and then stop them for a while. I did that myself, until a new drug came on the market that interested me. I remained stable during the two years on no therapy.

Symptom meds for muscle spasticity, spastic bladder, pain, migraines, and neurological discomfort keep us comfortable and improve quality of life. It can take time to find the right ones. Of course, we all have a different tolerance level for discomfort--as well as varying tolerance for drug side effects--so this is an individual choice best made in conjunction with our doctors.

As you mentioned, we do get used to our permanent symptoms: the buzzing, the numbness, dizziness, balance problems, slurred speech. Some of these things have no treatment and we have to change the way we behave to avoid falling and injuring ourselves, to communicate effectively, and to conserve our energy.

Sexual dysfunction is a tough one to live with and even tougher to treat. Men can try Viagra, but for women, it's a little more complicated. Personally, I lost my libido for years, but it returned when my hormone levels changed during perimenopause. My MS body is different sexually than the one I had prior to developing MS. I find it more difficult to climax and I do have some loss of sensation. There is some kind of detour in that brain-skin connection we need to "cross the finish line." I try to work with the body I have now and enjoy what I can.

I hope you'll discuss your questions and concerns with your doctor and keep an open mind about possible therapies. We all travel a twisty road with these decisions you are struggling with, and there is no wrong decision, really. We all change our minds about these things many times over the years. When we have a disease for a whole lifetime, our attitudes about treatments will change as we navigate through all the stages of our lives.


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