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Desert Storm Veteran asking of the probability exposures contributing to obtain MS.
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VeteranAdvocate posted:
I have been treated for Multiple Sclerosis for over 8 years. I have over 12 plaque lesions in my brain cavity, yet none in my spinal cord. My Primary Neurologist advised I have Progressive Relapsing form of MS. There has been no Neuro illnesses on both sides of our family in 4 generations. These are the medications and exposures during first Deployment;
  1. Anthrax Vaccine injected - Direct Orders - not of what is given now
  2. Pyridostigmine Bromide pill - Direct Orders
  3. Siren Gas (Nerve Agent)
  4. Pesticide Repellents to include high percentage of Deet
  5. Depleted Uranium
  6. Numerous Chemical Alarms sounding off repeatedly
  7. Outdoors when Unit (Patriot) shot 3 SCUD missiles down
  8. US Air Force disbursement of pesticides
  9. Inhaled smoke from oil fires
  10. inhaled smoke of 2 parts diesel 1 part Gasoline burning burning human waste.
  11. In sandstorms numerous times - ended up with an undiagnosed facial rash
  12. Down range in "Safe Zone" with Radar active
I recently was admitted onto the hospital due to a severe astribation. Due to the type of MS my fatigue has worsened. Soon to be ending the "Battle After the War" with the Veterans Administration will relieve much stress I bare. There are many other illnesses that I deal with on daily bases. Most to which are rare, as of Progressive Relapsing MS, yet denied by the VA. I have only been going through this for 6 years, but what is right is right. I have conducted over 10 years of research regarding Gulf War Illness, now called Chronic Multisymptom Illness. As my username is Veteran Advocate, I do what I can to assist any Veteran I can. I hope that you can give a hint of light on this subject for me. I thank you all for your time and interest, John
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hackwriter responded:
Dear John,

Several Gulf War vets have posted here about their travails with the VA and their MS, some of whom have told some pretty sad stories.

I don't know much about this except that the Department of Veterans Affairs does not consider MS to be a "presumptive illness" in connection with the Gulf War--though ALS is considered a presumptive illness. Everything else must be proven to have a scientific, irrefutable connection to the toxic exposure suffered by those veterans. I don't know what studies they are basing the ALS determination on that have shown a clear connection and I haven't researched it.

Maybe someone with more knowledge will share their insights.

Kim
 
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Anon_157363 responded:
I'am also Desert Storm, Desert Shield Vet. and have been battleing problems for over 3 plus years, and as of yet, still remaine undiagnossed by any doctor from the V.A. or other wise. Lets just say I have exhausted every avenue civilian and V.A. connected, DAV and a host of other supposed Veteran agencies to get anywhere with diagnosis and or trearment of this condition that I am currently going through.

We were and still are the governments guinnie pigs, just like many other Vets from other theaters of operation many years ago. With plausable deniability, they (The Gonernment) hides behind an iron curtian of denile and brurocratic red tape to protect them selfs from any and all accountability. Then tell you later that thier actions were justified, or that the National Security interists were or are at stake.

It is in my personal opinion, that if you feel that it is service connected in any way shape or form, Get outside help,Don't use the V.A. system. Really, I mean that whole heartedly, they will just keep adding to your missory, and drag it out as long as they can. Hopeing that you will just give up. You need to find out what it is first and start getting treatment, then go for the service connection part of it.

Because once it's exposed they cannot deny or hide it, and the help and treatment will come much faster.
 
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lepman responded:
Hey from a vet to a vet check this out please....

http://owndoc.com/lyme/multiple-sclerosis-is-lyme-disease-anatomy-of-a-cover-up/
 
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kek69 responded:
John my name is Keith. I have been fighting with VA since 1994. although I have not been diagnosed with MS all of my doctors refer to it for my symptoms. You may need to refer to having your illness redefined as MS-like or Multi-symptom illness related to Desert Storm service. I still am fighting with pain in legs arms back and head similar to having been hit with a taser. I have been misdiagnosed several times, to include mental illness. I do have PTSD and agoraphobia as well as a back injury that doctors have said that can not account for the pain I experience. Recently I was diagnosed with white matter brain lesions bilateraly. It most definitely has been a more than a battle with the VA as I have been limited to seeing mainly VA doctors and where I could civilian doctors, which helped guide VA to do proper and thorough testing. the later is what I would suggest for you. Keep up the fight, persistence is not only key it is nessesary
 
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david1951 replied to kek69's response:
Keith,


Try low dose Benadryl
1 mg per 40 lbs ( or - 10) of body weight at meal and bed times and 1 or 2 doses during the night IF you awaken during the night. The easiest way to get the low doses is to use the children's liquid. 1 ml of the liquid is 2.5 mg


This treatment should be helpful for agent orange exposure, gulf war syndrome, PTSD, and MS


IF you should experience increasing fatigue, stop the treatment, and tell your doctor to look for a sodium channel channelopathy. These are rare and not many doctors even know they exist.


If you try this, make sure the VA doctors are aware of your improvements, which will be amazing, and have them forward the info to Dr. Beatrice Golomb. She did work on Gulf war Syndrome and now works for the VA, She should understand the connection right away if you include the following links:


http://www.sciencedirect.com/science/article/pii/0006300261904498


and


http://www.sciencedirect.com/science/article/pii/0014482760900197




You might notice these were published more than 50 years ago and even allergies respond better to low dose Benadryl than either the adult or children's normal dose.....makes one wonder
 
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Stephanie Butler, RN responded:
Hello John,

You may be interested to know that at the MS Public Policy Conference this week we were discussing that there is a 40% increased incidence of MS among Dessert Storm Vets. A portion of the DOD budget has been going to MS research (the MS CDMRP) for this reason, and researchers have been trying to figure out what the connection is.


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