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    13 Year Old diagnosed with MS?
    avatar
    thecritik posted:
    Greetings Forum Members,

    Our 13 year old son has had 2 flare-ups in the last 5 months, the first related to optical neurosis and the second, decreased skin sensation in the abdomen area. Before the initial he had no history of any medical issues.

    His initial diagnosis with the Optical Neurosis was ADEM, then Clinically Isolated Syndrome. With is second flare-up, his diagnosis was again stated as ADEM. Each time, treated with hospitalization and high dose predisone.

    After 5 MRI's, 3 Lumbar Punctures, multiple blood tests and a CatScan, we saw a ped. MS specialist who confirmed his diagnosis of MS.

    We are contemplating a second opinion but as parents, we are questioning if that is just to put ourselves at ease because based on the symptoms and their resolution, high dose prednisone, based on what we've read and speaking with other neurologists, the diagnosis is pretty close to 100%.

    The hard part now is choosing a treatment option or whether we choose one at all. Being that he is 13, do we hold out until he has another flare-up to begin treatment?

    Any input from any forum members who have experience or children who have had to be treated would be appreciate.
    Reply
     
    avatar
    amcgrone responded:
    my 16 was daignose at 14 and she has is on tysibri.. I am a member of a parent group for children with ms contact our nurse Steven.Baisch@ucsfmedctr.org and he can get you some great info


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