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    Question
    avatar
    murse1975 posted:
    My name is Rick and my partner has had MS since 1988. He is now slowing down and his speech is slurred, walking has almost become impossible for him until we put him on AMPYRA. He still has ringing in his ear, his vision is blurry and his balance is off right now. I have to help him dress and shower, and put him to bed. Is it normal for him to have fatigue and migraines? Yet through all this that has gone on, he has been very upbeat w/ a sense of humor....He lives each day to the fullest and his attitude is awesome...I also learned that it's rare for men to have MS but MS does run in his family..that ms is more common in women. We had him tested twice and no matter how we sliced it, IT was MS....he's also on Avonex. Thanks in Advance...I'm very worried about him.
    Reply
     
    avatar
    hackwriter responded:
    Hi, Rick,

    The symptoms you've described are typical MS symptoms and progression. However, he might want to consider changing his therapy if Avonex seems not to be working as well as it was. Have you discussed his decline and reviewed his medications with the neurologist? If not, you should make your concerns known.

    There is lots of information about MS, its symptoms and treatments on the internet. Here are some reputable places to start your research:

    http://www.webmd.com/multiple-sclerosis/guide/multiple-sclerosis-symptoms-types

    http://www.mayoclinic.com/health/multiple-sclerosis/DS00188/DSECTION=symptoms

    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001747/

    http://www.nationalmssociety.org/index.aspx

    Hope this helps.

    Kim
     
    avatar
    murse1975 replied to hackwriter's response:
    Thank you Kim,,,,, We did change his therapy from Avonex to an oral medication and the Ampyra seems to be working well. The neurologist said that Ampyra is not successful with some people but that my partner is one of the lucky ones to have good results. Rob has his good days and bad days. Says he sounds like Kathryn Hepburn!! He has a wonderful sense of humor. Thank you for the info...I copied it and I'm learning a lot about MS. It's very rare for a man to have MS but the neuro told us it was probably from genetics in his family from his Mother's side. We'll keep you posted.

    Regards,

    Rick and Rob
    Seattle, WA


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