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Tecfidera vs. Gilenya
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michellepz posted:
Hi. I have been told by my neurologist that I should change my meds. from Avonex to either Tecfidera or Gilenya. I'm researching the two and wanted any feedback about these medications to help me make the best decision/choice. Thanks for your help!!!
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nana2el responded:
Hi Michellepz,

I have been taking Gilenya for 2 months and so far so good. Gilenya is the first and only MS drug I have taken, so I can't make any comparisons to any of the other drugs. My neuro, who is an MS specialist said it would be the drug he would take.

Since cost was a factor, and I was treatment naive, I was able to enroll in a study that is comparing injectables with Gilenya on the chance that I could get Gilenya.

You probably already know that you have to stay at doctor's office for the day to have BP and heart rate checked every hour. It went by really fast as my husband was there to keep me company and I met other patients who were there for various other treatments.

My heart rate dropped some there and for about a week or so after that. But no big deal. The only other thing I noticed was a loss of appetite (sometimes that's not a bad thing) for about a month and a little bit of hair thinning.

I have had some good days lately so hopefully it is helping. Maybe some other folks on here who have been taking it longer will weigh in as well.

Good luck!

Sandra
Sandrs
 
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neverquit7 responded:
I have been on Gilenya for almost 2 yrs. Before that I was on copaxone and then rebif. I had awful side effects with both types of injections. With the gilenya the first week or so was a little rough, meaning switching caused a relapse, but after that has been great. I went from multiple relapses p/year to hardly anything. I feel better than I have in years. Hope this helps
 
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kathy48334 responded:
I was on Avonex for 8 years with only 3 major attacks until Sept 2012. I am now on Tecfidera. I could not take Gilenya because of my eye and heart condition
One pill twice a day 12 hours apart. I am doing fine with it. Been on it since April 2013 . No new attacks. Eye has improved.


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