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Do I need to give up on doctors
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elaineb0621 posted:
In June of 2007 I was told I had 2 lesions on my brain and I had MS. The doctors I currently go to keeps putting the thought of MS off. I have most if not all of the symptoms and I feel like I am getting worse, but what do I do? I have had 4 MRI's in the past 6 years and still no results with my doctors.. I still have leg pain and numbness but the doctors in my home town will not help with any relieve, is there any out there for me?
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hackwriter responded:
Dear Elaine,

Did a neurologist diagnose you in 2007? That doctor should have discussed using one of the ten disease-modifying therapies with you right away and provided you with symptom medications that can make you feel more comfortable. If you feel you aren't getting the proper care, contact your local chapter of the National Multiple Sclerosis Society for a list of MS specialists in your area.

Kim
 
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lostalaskan replied to hackwriter's response:
I've had two brain lesions, a spine lesion, plus all the bouts of spasms (legs, feet, arms, hands, even over my ribcage), elevated white blood cell counts, and a ton of other "MS" symptoms but for years, although radiologists say 'suspected MS' there is not ONE doctor, including a neurologist who just made me squeeze her hand and walk across the room (on a great day for me, which meant I had pretty normal responses) ... so, I do not have MS! According to that neuro and a couple of family doctors. I had neuro diagnostic tests run a few years ago, the tech said I had "brain to eye" and "brain to legs" reactions but the neuro? Nah. 'YOU DO NOT HAVE MS!" .... OK. FINE! THEN WHAT IS THIS? Why does it come and go? What's the deal with the ever-increasing spasms? The memory loss? Can't remember names. Fall over air currents! Stumble on the patterns in the linoleum! Sex? WHAT is that? I sure don't even feel like I have the organs much less the desire! I'm numb or in pain almost all the time.

Yes, I DO have neuropathy. I do have diabetes. I do have cervical spine problems, like herniated cervical disks (two repaired, one needing it now) and yes, I have Hep C. And yep, 've had two heart attacks (clogged artery - repaired with four medicated stents). My ankles are brown, spotty, with millions of spider veins.Those same kind of spider veins are all over my legs - in less than two years. I am now 56, supposedly already gone through menopause cause I have not had a period in 13 years. I am 56. I have these horrid clammy sweats now, changing clothes and linens up to six times per day. Who needs that laundry bill?! Who has the energy to even DO that laundry? I air dry the sweaty clothes and pray I don't stink. I have very little "smelling ability" left!

My list of diseases/disorders grows longer every year but the ONE thing that no one will even entertain, that no doctor will even say aloud, is that thsi all could be all the above PLUS multiple sclerosis. Since the neuro problems really started about 1995, I've battled "neuropathy" ever since ... it's painful, the pain gets worse with exercise, and I have recently had my teeth pulled by a shoddy dentist, who neglected to inform me that I didnt have enough maxilla ridge to even hold in a denture so I am now toothless and ugly as sin. I've got more wrinkles, and got them in less than 90 days, than Carter has liver pills!

My sense of humor is the ONLY thing I have left, but it's getting so macabre that you have to KNOW me to know it is joking. "Suicide by cop after a few choice homicides" --- ha! I don't even own a gun, would never shoot anyone and would likely end up shooting myself in the leg, or blowing off my hand, by accident just loading one! I am so angry though.

WHAT IS WRONG WITH ME? Why do all these symptoms mean nothing except: diabetes, neuropathy, herniated disks? I don't get it. What about the spasms, the loss of memory, the loss of ability to recall names of people I see all the time, the stumble-bum walking ... and more!?! Even if they're not MS, I live with the symptoms just like it! How can I ever TELL it's MS if doctors don't even want to diagnose it? I'm not made of money, I use Medicaid cause I am officially now disabled. And in Alaska, with Xerox just taking over Medicaid, thanks to our lousy politicians, I'm getting LESS medications than ever, having to inject insulin blindly (no test strips), authorized surgeries suddenly yanked and declined the day of the surgery! I don't know how much more of this crap I can take.

The idea of suicide comes often. I AM loved and wanted so I cannot do that, I know .... but sometimes, at the height of all the pain, the spasms and mental wondering ... it sounds so good. Eternal rest from all this mess sounds pretty darn good during some weeks, and then ... nope! The rest of the time I'm fine. Nothing comes and goes like this EXCEPT multiple sclerosis. WHY do doctors run from the dx?
 
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engineerguy replied to lostalaskan's response:
Dear LostAlaskan,


You sound like a dear soul. You are intelligent, but face it, you are really in bad shape, physically. I humbly offer you my input, only because you seem like the type of person who can see a situation, and make a decision. By the way, your sense of humor is great to see. And, as you say, you have your loved ones also. And you have your intelligence.


Your post is asking physicians to figure out what is wrong with you, and give you the right medication to make you healthy again. You have heart disease. You have diabetes. You think you probably have MS. You are intelligent. You know the answer to this question. Can a physician heal heart disease, diabetes or MS? No, not at all. The most physicians promise, is medications or surgery to help you live with those conditions, while the condition hopefully does not get worse too quickly. But there is a great deal of hope! Please read on.


There is a movement of physicians who have been curing heart disease, diabetes and hypertension and more, for over 30 years. I follow Dr. Joel Fuhrman's Eat To Live diet. Dr. Fuhrman has excellent success with autoimmune disease, including MS, also. I believe Dr. Fuhrman has improved upon the other programs I list. I followed Pritikin for 30 years, and changed to Fuhrman 6 years ago.


President Bill Clinton has adopted the Ornish diet, and is reversing his heart disease. Dr. Dean Ornish (www.pmri.org ).


Dr. Esselstyn published the most effective treatment for heart disease, ever published in a medical journal. See his website www.heartattackproof.com and click on Article/Studies, to see references of articles he authored, in including 2 articles in the American Journal of Cardiology, Preventive Cardiology, and more.


The Pritikin Longevity Center has been open over 30 years, and has published over 100 articles in medical and nutrition journals. Open www.pritikin.com and click on Your Health - Scientifically Proven Results. A couple exerpts:


Control Diabetes and, for Many, Eliminate the Need for Drugs


A meta-analysis of 864 diabetics found that fasting glucose fell on average 19% within three weeks. Of those on oral drugs, 74% left Pritikin free of these drugs, and the majority of the others had their dosages significantly reduced. Of those taking insulin shots, 44% left insulin-free. Journal of Applied Physiology,98: 3, 2005. See also Diabetes Care, 17: 1469, 1994.


A two- to three-year follow-up of another group of diabetics who attended the Pritikin Center documented long-term control of diabetes through the Pritikin Program. Diabetes Care, 6: 268, 1983.



A five-year follow-up of 64 people who went to Pritikin instead of having coronary bypass surgery found that 80% had never needed the surgery. Journal of Cardiac Rehabilitation, 3: 183, 1983.


The Pritikin Center was covered by 60 Minutes twice, back in the 1970's.


Other leaders of the movement I follow, are Dr John McDougall (www.drmcdougall.com ) and Dr. Neal Barard (www.drnealbarnard.org )


Please see my posts on this website:


http://forums.webmd.com/3/multiple-sclerosis-exchange/forum/5332


and


http://forums.webmd.com/3/multiple-sclerosis-exchange/forum/5337


The wonderful thing is, that the same treatment, this diet and exercise, is the treatment for all of these conditions. I eat vegetables, fruit, beans, nuts and seeds, and whole grains.


In Alaska, you can have frozen veggies and fruit. Beans are the only cheap and super healthy food. Do the best you can to find some lettuce and other greens, in your market.


If this is all true, why have you not heard of this? Why has you doctor not told you? Why has you doctor not head of this? The most important reason is probably that no one has a financial incentive to publicize this program. You can't keep the operating rooms full and the pharmaceutical companies prosperous, by telling people how to avoid drugs and surgery by getting well.


Wishing you the best in health, EngineerGuy (Stacy)


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