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    "YOU DO NOT HAVE MS!""
    avatar
    lostalaskan posted:
    How many times have I heard this? I lost count!

    Just like I've lost count the number of times I've fallen, the number of times I've dropped things, the number of all-night leg spasms, the number of times I got the ribcage 'hug' and so much more! It's always attributed to diabetes, neuropathy, degenerative disk disease, psychiatric problems and the great one, "it's just in your head, relax and don't stress out so much." STRESS?! I've got it now, and plenty but gee, ya think it could be from being denied the right treatments for the last 16 years? Now, I am angry, frustrated and trust NO physicians for much more than giving me pain meds. I'm not ever going to be well again, and am tired of the merry-go-round of doctor visits. Sex? HA! A LIFE? I no longer have one. I don't even want one anymore. In fact, after a night in the hospital, hooked up to all kinds of heart monitors, had my blood and urine tested and all they come back with is: elevated white blood cells. Yet, I'm spasming and having insomnia, and am losing the regular use of my legs. It's so much more than that but for now, that's enough. I start crying if I say too much anymore. I'm tired of being treated like I'm stupid, and that I somehow don't deserve any respect.

    Do I have MS? Honestly, I think so. So do all the radiologists and a few nurses. But the doctors, even a neurologist, think I'm just fine! I wish they could crawl a mile in my body for a month or two, THEN let them diagnose!
    Reply
     
    avatar
    hackwriter responded:
    Dear lostalaskan,

    You haven't mentioned the results of testing. Have you had brain and spine MRIs, a lumbar puncture, EPTs, and neurologic exams to test reflexes, strength, coordination and balance?

    If you are not happy with the care you've received, then you've got to seek out an MS specialist. Don't give up.

    Kim


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