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Hives as a symtom ?
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himilayancat posted:
Hi... I just wondered if anyone has had an issue with chronic hives as perhaps being caused by the auto immune reaction of your body & MS. Four yrs ago I had shingles which comes from a latent effect of childhood chicken pox & since I have had chronic hives with no relief from allergy immuniology shots. I use benedryl constantly.Last year I got the MS diagnosis after having various symtoms but culminating with the lesions shown on the MRI.My doctor hasn't seen any other person with hives.Just curious if there is anyone else ot there.
ME
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mimiandmommom responded:
himilayancat,
hi!.......I get unexplained rashes, hives, red spots, anything out there its mine. I can't take any of the injection drugs because hives are my favorite thing to get. Right now I have hives on my neck and arms for no reason. I also live on benadryll. My neuro has done every test there is and even had me go for a second opinion with the same results. Part of my MS. Wonderful isn't it?
 
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jaymactx responded:
I was diagnosed in 1997 with R/R MS which has worsened over time. We moved, and my current neurologist feels I was misdiagnosed; should have been primary progressive. Have been on Novantrone for 21 mos. and have experienced no new symptoms. Some of the old ones have worsened but no new ones! However, recently I have begun to experience hives just as you described. They occur at any time of day or night on any part of my body. I also had wondered about the connection to an autoimmune disease. I have an appt. with the oncologist for next Novantrone tx. in mid-August and intend to discuss with him the possible origin of the hives. I take Benadryl and use Caladryl lotion which seems to help. You may want to give it a try. Hope this helps you in some way!
 
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himilayancat replied to mimiandmommom's response:
Thanks for responding. I guess I can't say its good to know of others dealing with this because it all really sucks and I'm sorry you can't take any injections. I do but have the red site reactions that just adds more technocolor ! You gotta have a sense of humor !
 
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himilayancat replied to jaymactx's response:
Thanks for responding! If you find out any info on the hives please let us know. I haven't used Caladryl but do steadily use Hydrocordisone.I guess our MS bodies are so sensitive to reactions-heat,cold,pressure,etc that the hive reaction and angiodema isn't that odd when you think of it...but man,living it really is annoying and frustrating.Bless you all & keep smiling....
 
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Heidi706 responded:
Hi, I have hives also. My neuro sent me to an allergy doctor. He said that the hives are from the MS breaking down the immune system. For about 3 years I've been taking Allegra twice a day and it works out fine. I've never been able to stop taking it. If I miss one I start to get hives.
Good Luck! Hope you find something that works for you.
 
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jlamptok responded:
that is whats happening to me. with no relief. Needto know isthere relief?
 
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katiendan responded:
Hi! I've also had a problem with hives for years before my MS diagnosis - and the doctors also said they knew of no one else with this issue.

Then, just as spontaneous as the chronic hives started, they stopped - and after nearly a decade of dealing with MAJOR hives all over my body I now only get them when I consume dairy products...

So sorry you're going through this, but you are not alone - I can totally relate!

Take Care,
Katie
 
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juleeko responded:
I was diagnosed w/ MS last month. I am 40 yrs old & I currently break out in hives every single time I break a sweat! I noticed this for the 1st time at the age of 21. It accompanied burning & tingling in my right leg, muscle aches & blurry vision. Then it reappeared around 27 along w/ a numb right foot & migraines. Now for the last yr I get hives daily, have numbness, burning & pain in my right leg, arms, neck, shoulder, foot & cheek. My doctor doesn't seem to think my hives are related...however every time my numbness, tingling, pain & exhaustion return...so do the hives!!!
 
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carol558 replied to juleeko's response:
I was diagnosed in the 70's and I have had a mild case of ms. I started breaking out in hives on various parts of my body but not on my legs about three weeks ago. It didn't make any sense to me and I was blaming my long haired cat but it is not her. I sucks to have hives but it is good to know what the cause is. I will try the suggestions made in the older responses.
 
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Stephanie Butler, RN responded:
I have to admit, I also haven't ever heard of this being a symptoms of MS. Thank you for your post!

After reading your story and everyone else's response I did some research. Obviously the first step should be to rule out an allergic reaction caused by medications, pets, food etc... Since you get allergy shots, I'm assuming you have already had a full work up by an allergist?

According to the International Chronic Urticaria Society autoimmune diseases may be linked to "chronic idiopathic urticaria"- or rashes that have no obvious cause. You can read more on their website: http://chronichives.com/frequently-asked-questions/

Again, thank you for telling your story and keep us up to date with how you are doing!

Stephanie


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