I have had MS for 21 years now. The last 10 have been the hardest. My fatigue seems connected to my difficulty in moving - perhaps connected to the effort required to do little things. I've found that a key is to keep moving. I hate to exercise, so I need an activity that doesn't seem like exercise. My solution is my 4 horses, 3 of them rescues. I rarely ride anymore - just grooming and tacking up uses up my energy - but taking care of them keeps me moving. My neurologist agrees that they have kept me out of a wheelchair. Practically, I may not be able to continue rescuing horses, and am now training my own service dog. "Brindy" is a brindle, Staffordshire (one of the pit bulls!) mix whom I adopted from the Humane Society. Since she has a lot of energy, I have to exercise her and that keeps me moving. We go all kinds of places and we take walks in our neighborhood with me in my electric wheelchair. Maybe animals are not your thing. Children (and grandkids!) work for many people. The key is to find something that makes you move when you don't feel like it. USE IT OR LOSE IT!
I also have fatige and I tried using provigil but i ended up getting mouth sores and had to stop. it took a month or so for me to figure out the provigil was the cause - it was a very long month lol i did really like how it helped with energy - not a shaky hopped feeling just the ability to make it untill bed time
Bummer, Provigil haas really helped me. I was worried at 1st, I thought It would make me shakey but it didn't. I can't even take Excedrine without wigging out. It sure helps me get through the work day.
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