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A way to deal with heat sensitivity
Nancy04232004 posted:
Like many of us, we do not deal with heat very well. I have found that drinking lots of liquids such as water and/or flavored with a powder like Crystal Lite helps this. Even before my dx of MS, I had issues with this to the point of heat stroke when I could not sweat. My drinking extra water enables me to sweat and we all know that this is a way to stay cool. For quite some time, I have been drinking around 3 liters a day, sometimes more. When I recently went for a power walk for my regular exercise in 91 degree heat, I managed to complete my walk without seeing my MS symptoms temporarily flare up by allowing me to sweat properly and I did not feel like a wilted flower either. In order for this to work, I would highly stay away from sodas, tea and coffee as these will draw water out of your system, rather than to replenish it.
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MsSherry responded:
Thank you Nancy that was great information. I've just been diagnosed and actually afraid to walk long distances for fear of falling or becoming exhausted. I see my neurologist for a follow up next week and I will ask questions about limitations.

I guess I am in the early stages dealing with fear and the unknown.
jimMS91 replied to MsSherry's response:
Hello Sherry,

It is great that you want to keep moving. I too fear fatigue or falling, so I make sure I walk with someone or carry a cell phone. I swim to keep active, also do p.t. and walking in water (a pool); that way you keep cool and can exercise. An ice pack under your hat helps too.

I have had MS since 91, and have needed a cane ( I use a hiking stick) outside for at least 15 of those years. It's natural to fear the unknown from the disease, but remember you can help influence its progression. Try to keep up a positive attitude, don't focus on just the limitations - focus on what you still can do, even with accommodations. Doing something to help yourself, like diet or exercise, helps you feel you are keeping some control. Good luck and keep moving.

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