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We answer all types of Neurology/Neurological questions about the brain, spinal cord, and peripheral nerves. Include your age, sex, current meds, and known diagnoses, upcoming/completed appointments, tests, or procedures. We are not physicians. We help explain medical terminology and give support.
Painful feet make it impossible to walk or stand - Think it may be peripheral neuropathy
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Halley888 posted:
Painful feet & legs - Could it be Neuropathy? I've been having severe pain in my feet and legs. I can hardly stand or walk. I went to a neurologist and she said it was Restless Leg Syndrome and gave me Mirapex to take before I go to bed. It has helped me sleep, but I think this is more than Restless Leg Syndrome. Would I have such pain in my feet that I can't stand to wear shoes and cannot walk or stand?

This pain has been going on for over six months. I've gone to a neurologist and an ENDO. I had my thyroid removed in 2008, so whenever I have any pain, my lack of a thyroid is blamed. My ENDO said once my thyroid is normal, the pain will go away. Well, it hasn't.

I also have numbess in my feet and am off balance. I've told the doctors this, but no one is taking it seriously. I also have trembling in my hands and feet. I can hardly write at times and shake when I try to put my key in door. I've complained about this trembling to doctors and ER.

What kind of doctor should I go to and what type of tests should I get? I have no health insurance and this is part of the problem, in that the doctors don't want to do any expensive tests. Can a blood test show neuropathy?

I also have been having pain in my hands and arms, which makes me think is is maybe peripheral neuropathy. I'm not diabetic. I've even gone to ER with these symptoms plus dizziness. I've gotten glucose tests which one was 143 and two weeks later was 100. I've had head scan and it showed nothing.

Can anyone give me advice on the type of doctor and tests to get?

Thank you.
Reply
 
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susiemargaret responded:
hello, H --

"neuropathy" is a generic term for a disorder that causes nerve damage or nerve pain (see PS1); it is not a disease per se, outside the context of some particular condition, even tho the particular condition may not be known (PS2).

as i see it, the relevant Qs for you are --

-- what disorder is causing your nerve pain, and will treatment of that disorder reduce or eliminate the pain?

-- regardless of its cause, can your nerve pain itself be treated?

these are separate issues.

as far as diagnosis, you need to see a neurologist. i am sure that it is discouraging for you to hear this, because you've already seen at least one neurologist, but you need to see one who is willing to conduct enough testing (PS3) to narrow down some possible causes and therefore some possible treatments. finances are a problem, i know, so in a subsequent post i have listed some resources for finding free/low-cost medical care; be sure to tell them that you need to see a neurologist.

as far as treatment (PS4), you have two options --

-- to treat the disorder causing your nerve pain if that disorder can be determined, and for that you would see a neurologist;

-- to treat the nerve pain itself, regardless of whether its cause is known, and for that you may want to consult a pain management clinic, where the drs are likely to be very up-to-date on the latest techniques for treating and managing pain.

finally, if you have not done so already, you may also want to take a look, or post, in the pain managerment community, http://exchanges.webmd.com/pain-management-exchange , where there is an expert on-board

i hope you can find some relief soon and that you will keep us posted on how you are doing.

-- susie margaret

PS1 -- a good discussion of the causes and symptoms of nerve damage and nerve pain is at http://www.webmd.com/brain/nerve-pain-and-nerve-damage-symptoms-and-causes .

PS2 -- a good discussion of unexplained nerve pain is at http://www.webmd.com/pain-management/unexplained-nerve-pain-the-mystery-of-neuropathic-pain .

PS3 -- a good summary of the various tests that are used to diagnose the cause of pain is at http://www.webmd.com/pain-management/guide/pain-management-diagnosing .

PS4 -- an extensive outline/discussion of various treatments for pain is at http://www.webmd.com/pain-management/guide/pain-management-treatment-care .
what good is gold, or silver too, if your heart's not good and true -- hank williams, sr.
 
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susiemargaret responded:
hello again, H --

as promised, here are some resources for finding free/low-cost medical care --

-- check out these websites -- http://www.coverageforall.org/finder/index.php , http://www.freeclinics.us/freeclinic.php , http://www.needymeds.org/free_clinics.taf , http://www.findahealthcenter.hrsa.gov , http://www.freemedicalcamps.com/index.php , http://www.pparx.org/en/prescription_assistance_programs/free_clinic_finder , http://community.catholiccharitiesusa.org/NetCommunity/Page.aspx?pid=292&srcid=288 , and http://www.211.org ;

-- check out the website for the "live united" campaign of the united way -- http://www.liveunited.org -- and use the "search our site" box at the right in the second blue ribbon to do a "search" for your city or state to find medical care programs in your area;

-- call your city, county, or state dept of health and dept of family services (or something that sounds equivalent), and ask if there are free or low-cost clinics in your area;

-- go to the website for your state government, e.g., http:// www.your_state.gov , and click on every social services link you can find;

-- look for free or low-cost clinics at nearby medical schools and large hospitals; and

-- check out these websites to determine your eligibility for various govt assistance programs -- https://www.benefitscheckup.org/index.cfm?partner_id=0 , http://www.govbenefits.gov/govbenefits_en.portal?_nfpb=true&_pageLabel=gbcc_page_home&_nfls=false , and http://www.eldercare.gov/Eldercare.NET/Public/Home.aspx .

i hope this helps.

-- susie margaret
what good is gold, or silver too, if your heart's not good and true -- hank williams, sr.
 
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grandmalyn responded:
I feel like I am reading my own story! If anyone knows what this could be, please let me know also. My symptoms have gotten so bad over the past year that I went from working 50 hours a week and living a full life to being put on disability. I just turned 63 and feel 83. I was always so independent and now I live with my son and his family, which is something I never wanted to do. Since I am not 65 I have to wait 2 years for insurance. I can't afford the tests and doctors who don't have the time to explain everything. And NO, I am not a drug seeker, or a diabetic, I don't drink, do drugs and I never smoked.
The pain in my feet and legs feels like every step I take is like walking with barbed wire around my feet and lower extremities. Steps are the absolute works. My feet are so stiff I cannot bend them to walk up them. I have to crawl. Every test comes out normal.
My symptoms started with shakiness in my hand and suddenly not being able to write. The words word fall right off the page. I did a lot of paperwork and ended up switching jobs because I couldn't keep up. I had my thyroid removed in 2012. I've had RLS since approx age 27, (35 years & no one knew what I was talking about). X-rays show nothing.
I need to find a low income place. Any suggestions or ideas?
 
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Fatherofthree replied to grandmalyn's response:
Not a Dr, but a key thing stood out when you said you had your thyroid removed in 2012. Whenever surgery is involved they cut through and disrupt nerves , muscles and tendons. In your case a nerve may have been impacted by the surgery which is causing your current problem. I am dealing with some very similar circumstances but in my case it is my wife who had a upper lobectomy in 2012. She has hand trembling, weakness in legs and feet. MS type symptoms such as involuntary muscle contraction and some very bad vertigo. We are currently working with a Neurologist trying to find the answers but, So far all we are getting is a neuropathy diagnosis with possible MS. To me the symptoms are more like Parkinson's in some ways. Trying to find answers myself .


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