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Patient Advocacy and OnLine Research
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redbear2005 posted:
Titled "Giving Something Back", lawhern.org is one individual's effort to place skills developed during 20+ years of professional online research at the disposal "all comers". Although the site addresses several broad missions, it includes articles on chronic neurological face pain and trigeminal neuralgia. The site author is Richard A. "Red" Lawhern, Ph.D.

Although my graduate degrees are in systems engineering and my professional career(s) were concentrated in advanced non-medical technology, I have edited, co-edited, or contributed articles to four other websites that address the concerns of chronic neurological pain patients, with a particular focus on trigeminal neuralgia (tic deloureaux). " I am a former webmaster for the US Trigeminal Neuralgia Association homepage, and a past member of the TNA Board of Directors. [note: TNA does not approve my postings or my website, and is not responsible for any of the advice or research that I provide through this medium>.

Over a 14 year period, I have corresponded with more than 2,000 patients and family members concerning a disorder that has been described as "the worst pain known to medical practice". I assist patients to find and to understand authoritative Internet sources on chronic pain and its frequent companion disorder, chronic depression. I am not a licensed medical doctor, and I do not diagnose or make treatment recommendations. However, from long familiarity, I can hear patient concerns and point to information resources they may use in their own behalf, in a manner that few medical doctors are allowed to employ because of time limitations or an overload of cases reimbursed under insurance.

All are welcome at my site. I also make an effort to visit WebMD forums regularly, and to answer email inquiries in a timely way.

Go in Peace and Power

R.A. "Red" Lawhern, Ph.D.
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