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Ptosis...don't know what to do
nadieva1980 posted:
Hi everyone,
I'm a first time mom of a 4-and a half month old. Last week my LO was dignosed with ptosis of the left eye (droopy eyelid). His left eyelid does not open all the way as his right one does. The eyelid is right above the pupil, but covers the upper portion of the upper dark part of the eye...
The eye specialist told us that he should have a surgery at 6 months to insert some silicone thing that would help his eyelid open when he moves his eyebrow. This insert mentioned would have to be replaced as the baby grows (in a successful surgery the first replacement would last for about 2 years). Then the LO would have to go to surgeries for the rest of his life
Has anyone had to deal with ptosis? What was your recommendation? What did you decide and how old is your LO now? What was the outcome?

The doctor says that if we wait too long the vision on the left eye can worsen (there is a little astigmatism developing already), also other issues might appear, for example with the neck problems as my LO tries to lift his head to see better with his left eye.

I'm so sad, and waiting to get a second opinion. Currently I'm waiting and as per the doctor's recommendation placing an eye patch for 2hrs every day on the right eye so that the left eye is used more. I wish there was an alternative to surgery so that my LO's vision is not affected and he wouldn't need surgeries for the rest of life....Any feedback with real experience will be greatly appreciated.
Elizabeth_WebMD_Staff responded:
Hi Nadieva1908 and Welcome -

First of all - Much congratulations on the birth of your little guy!

It is so upsetting thinking your LO will have to endure surgeries and treatments. We are so sorry and can't imagine what you are going through.

While waiting for more response, we wanted to pass along a resource and suggestion. This is from our site Medscape, Congenital Ptosis . It's pretty heavy and technical, but may spark some questions to discuss with the doctors.

We also have a wonderful expert, Dr. Alan Kozarsky, on our Eye Health Community. Please repost over there for possible response.

Keep us posted and let us know what you find out after the second opinion.

Thinking of you and your family,
~To be a child is to know the joy of living, To have a child is to know the gift of life.~ Author Unknown

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