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lifegetting65 posted:
am 45 yrs old and have had my entire large intestine and rectum removed in 96.this resulted from a hereditary trait i recieved from my mom called familial polyposis colitis.drs determined it had started when i was 3-4 yrs old.since that surgery,ive been seeing a puluminologist because i have plueral scarring due to my dad bring asbestos home on his clothes when i was at age 3 until the plant ceased production of that material in 74.in 2003 my puluminologist found a single mass in my thyroid.well,last may,after the drs in my hometown said my thyroid was working fine i went to endocrinologist outta town and he did a pet scan and a needle biopsy on the growth,after i had found out the familial polyposis colitis gene predisposes me to have a 60%greater chance of coming down with thyroid cancer just because that marker that is in my dna.the thyroid was found to have cancer in it.i ended up changing primary drs cause the dr told me b4 i went to see the specialist on my test results,that i had mono.well,i told him what i thought and left,never to return to his office again.i went to another dr in town and told her my whole story and that i wasnt making this stuff up and i was getting tired of drs telling me everything was fine.i told her the story and she listened to me.she comes out with that everything that had told her was absolutely true but i needed the pet scan and needle biopsy.i told her i already had the pet scan but never did hear from the dr on the results of the pet scan.it took some effort and determination on my part to get something done when i knew there was something going on and for a little while im ok after having to get my whole entire thyroid removed after i ended up getting an unexpected hysterectomy because of a ovarian cyst the size of a large cantalope.i found out about that 12hrs b4 in the er b4 i had to go to my scheduled appt with the endocrinologist to see how to proceed with the cancerous thyroid.the short of this is ....if u have a gut feeling somethings not right....do research ..go see the dr ...and insist...tests be done.....
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neworleanslady6 responded:
Dear lifegetting65,
I don't know u nor have I ever met you, but I LOVE YOU!!!! I am an RN Nurse Specialist who works as a Nurse circulator in a busy O.R. I see soooooo many surgerys having to be performed on cases as yours. We "know " something is wrong so we go to the doctor. SOMETIMES they examine us and give us their "opinion." Usually a prescription then send us on our way. Only to find out not too long down the road that something was terribly wrong, and we hadn't just "imagined" it. Then you end up in a Surgery room (which is very scary and traumatizing to a lot of people.) When a second or third opinion could have prevented it. Please America, if you have even the mildest of symptoms, and your inner self is telling you something is wrong, believe me SOMETHING IS WRONG!!!! It is your right to get ALL of your medical records to include all radiologic,diagnostic, and pathologic reports IN A TIMELY MANNER, and seek a second or third opinion. I am SO SORRY you went through all that pain. I know the mental and emotional scars did more damage to you than the physical surgical scar. I'm going to bed now, and I will pray for you and others like you that really just do as they r told by "the" doctor. Doctors are WRONG A LOT!!!!!!! I will also pray that your story will help save someone else from going through the suffering that you did, and still are enduring. Thank you for sharing.............from a caring surgery RN in the South.


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