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If you have had an organ transplant then you may want to also become a member of these communities if they are applicable to your condition to share your experience:
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Prednisone after transplant
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An_255048 posted:
I'm a grade 3 chronic kidney disease patient approaching dialysis. If I ever need a transplant, my daughter has already offered so I am very lucky. My question is, does every transplant patient automatically go on prednisone? I take it for asthma, lupus, colitis, in tapered doses or pulses IV and have many mood problems that I then have to take other drugs to counteract. Is it a usual dose over 40 mg? Thanks for any info..I forget to ask my Neph every time I go.
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mrscora01 responded:
Believe it or not, there are quite a few of us now who are on steroid avoidance protocols. Some 10 year studies came out recently showing good success. As for regular maintenance doses for those on it, I believe that most people taper down to about 5 mg per day once they are stable. I would suggest trying Transplant Friends . It's a good website and there are a ton of both recipients and donors. We've got a few kidney folks here too, so hopefully someone will chime in as well.

Cora
 
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lainsky responded:
Hi. I'm a liver transplant recipient 3/21/13. I am now being tapered off prednisone. I'm having blood work more often during the process. I hope this helps.
 
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Abbbby responded:
Hi. Had my kidney transplant end of July 2015 from my amazing wonderful sister.

I was really scared about having to take prednisone again and this time forever! Last time on it was for FSGS. The prednisone didn't work but it did give me all the side effects. The crazy high anxiety, the moon face, the hump, the insomnia and so on.

I am happy to report that it has been a much better experience thus time around. My only major side effect has been insomnia. This time around however I am on Brintellit so that probably helps with the anxiety a bit.

Although I received an enormous dosage of prednisone for the transplant my perscripted home dosage was significantly smaller. Was given 20mg to start and was tapered down to 5mg after about a month.

I was told I had to have the prednisone but if the complications were really bad I could eventually be taken off. This early in recovery Dr's advised against it.

Hope this helps
 
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mrscora01 replied to Abbbby's response:
Hi Abbbby (hope I got the right # of 'b's). Glad your transplant went well. How are you feeling right now?

This transplant board is nice, but very quiet. The OP of this threat has not been here in 2 years. I'd definitely try the Transplant Friends link I posted earlier.

Cora


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