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If you have had an organ transplant then you may want to also become a member of these communities if they are applicable to your condition to share your experience:
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Concerned for brothers life!!!!
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concernforbrotherslife posted:
My brother is 41 years old and at the age of 14 he was diagnosed with Diabetes after having a goiter removed from his neck. he had multiple complications after the surgery which resulted in the Diabetes. My mother donated a kidney to him 6yrs ago. He no longer has diabetes but, everything else in his system is shutting down. He is having all of his medical treatment done at University of Michigan and I believe they are failing him. He has Rheumatoid Arthritis thru his entire body. His white blood cell count keeps decreasing (doctors won't tell him anything), cannot bend over any more, severe memory loss, 5'10' and 105lbs, has probably 3/4 of the symptoms for Lupus, constant fatigue, Depression, Anemia, and when he bleeds - instead of the regular stuff coming out (red blood) it is a clear liquid. At one point he had diahrea for almost 6 months with blood in his stool and constant vomiting. I just need to hear from someone who may be able to help. I am scared that if we don't find someone who can help he will end his own life because he can't deal with the pain any more. Pain meds don't work and his doctors are doing nothing but passing the time and telling him to just wait it out because it should subside. This has been going on now for 3 yrs. They say that they will run a battery of tests but never do. He has seen everyone from a Gastro doc, to a Rheumatoid doc, to a Neurologist. Now they want him to see a Shrink because they think it is in his head. My brother is wasting away and instead of them doing anything for him, they are pawning him off because no one wants to take a chance to save his life. No one is helping.. My brother is going to die if someone doesn't step in. If you can offer any help, please email me at pendletonrl@hotmail.com, pendletonrl@yahoo.com or rebecca.pendleton@us.af.mil. Thank you
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MrsCora01 responded:
There are so many symptoms that it could be a number of things. I had a severe problem with a CMV (cytomegalovirus) infection last year and spent 7 months in the hospital with diahrea, vomiting, and wasting away. My white blood cells dropped to almost nothing as well. Has he been checked for this? I know this is a long shot, but from the sound of it, it wouldn't hurt to check. I was put on anti viral meds and had my immunosuppression drugs lowered for a while. It did take some time, but I did get over it.

Hope this helps a bit.

Cora


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