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eddymac posted:
I have a 37 year old son who has CP, is blind and mentally retarded. Recently, his temperment has changed and he appears to be in pain. His hips are displaced and his knee joints are extremely large in comparison to his legs which are very thin because of lack of muscle. Is anyone aware of any type of medication that would help with this problem? We live in Central Florida and we have been unable to locate a doctor who specializes in CP.

bonebabe responded:
I'm so sorry to hear of this. It must be very difficult and worrisome for you as well as for him.

Have you talked to a rheumatologist about this? That might be a starting point.

Hopefully one of the physician experts on this board can address this and give you some direction.
Elizabeth_WebMD_Staff responded:
Hello and Welcome Eddymac,

I wanted to offer this information to help find resources and health care professionals in Florida -

United Cerebral Palsy: Find your local UCP
The ARC of Florida
National Federation of the Blind Florida

Hopefully, one of these organizations can point you in the direction of an orthopedist with background in CP. You may also want to try a larger teaching or University hospital.

Hoping you find answers soon, please keep us posted,
eddymac replied to bonebabe's response:
Good Morning and Thank you Bonebabe - our family doctor decided to xray Jeff's lower extremeties before referring him to an Orthopedic Physicial - hopefully some answers will be forthcoming and Jeff will get some relief.

eddymac replied to Elizabeth_WebMD_Staff's response:
Good Morning and thank you for your suggestions.

Jeff goes to ARC and we did contact United Cerebral Palsy of Central Florida; sadly they are/were unable to offer any assistance.

We haven't contacted any Blind Services yet but we sure will as they were the only organizations that offered us any suggestions/assistance when Jeff was first born.

Jeff's doctor is taking xrays of his lower extremeties and maybe we will have some answers soon.


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