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Need advice!!!
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SWEETSAL1968 posted:
I have a 25yo daughter, she weighs about 91lbs and is about 5ft, who went through premature ovarian failure when she was 18yo. She also has Osteoporosis and Osteopenia in her back, hips, and neck. She also has mild - moderate curve in her spine. The doctor would like to put her on Fosamax but I can't find any research on someone her age taking it. There are a lot of side effects to this medicine and I would like to know if there is going to be any long term effects to her health??? Are there any younger people on this medicine and how are you doing with it???
Thanks for the help!!!
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pattiii responded:
You may seek some information at saveourbones.com
There is a natural bone building guide there.
Vivian \Goldschmidt advocates for an 80% alkalizing foods diet (with 20% acidifying foods to total 100%). That with weight bearing exercise is her answer to strengthening bones. She does not advocate for fosamax or anything that is comparable to ingesting laundry detergent (which she says fosamax is).
Hope this is helpful.
Pat
 
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foxtrotblonde replied to pattiii's response:
Really?

How many people stay on any kind of diet for long? Especially a young person? If her daughter is motivated to try this diet and likes the food and this works, great....

How about Vitamin D?

How about magnesium?

How about gaining weight (to probably 105-115 lbs I would guess but her doctor would be the best to advise her on this based on her frame) which would mean including non and low fat dairy?

I eat non fat pudding with skim milk with added protein powder and added dry peanut butter powder, added dry milk powder, added flaxseed ....and eat 2 cups of it every day.... She could add a topping of nuts.

I had a complete hysterectomy at age 28/yet was told it was a partial and did not include the ovaries. So I was not on ERT until I was 50 when I finally found out, oops, no ovaries so I am in a position now at 54 with ever worsening full osteoporosis as well as chronic pain from a failed cervical fusion, chronic daily headaches, migraines 2-5x a week, fibromyalgia, reflux, irritable bladder, and hypothyroidism. I am on Boniva and have not noticed any side effects nor improvements but due to my pain I have days where I am bedbound and am immobile.

I have read 98% of bone is formed by age 18 (I was very inactive due to hypothyroidism and stayed out of the sun due to migraines) and the rest is formed by age 30.... I think after that we are just trying to keep from going down the slippery slope!
 
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Tomato05 responded:
I was on Fosamax (fairly young, 35 years) for a number of years, and I don't have a lot of faith in its efficiency. While taking it I was still getting a fracture more or less annually. Since started exercising (aggressively, 6 times a week, lots of both cardio and challenging weight training) and taking vit D and fish oil capsules in addition to the calcium I had been taking before, and taking Strontium, my fractures have stopped happening.

However, it is of course a personal decision and you have to try and gather as much information as you can, consult professionals, read research etc. and then make the decision you think is best.

If she decides to take Fosamax I would suggest a break (medication "holiday") every 2.5 years or so.
 
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NATIONAL OSTEOPOROSIS FOUNDATION
Adi Cohen, MD, MHS responded:
Premature ovarian failure is associated with bone loss and increased fracture risk. Additionally, illnesses or medications that have led to premature ovarian failure may also have consequences for bone health. In some cases, if there are no contraindications, estrogen can be used to prevent bone loss in this setting. When estrogen is contraindicated, bisphosphonates are sometimes considered. The choice of bisphosphonates in younger women must take into account our increasing concerns about the potential risks of long-term use of these agents. In young women, plans for duration of bisphosphonate use should be discussed as part of the process of initiation of this therapy. More research is needed to better understand the potential risks of these medications.
 
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SWEETSAL1968 replied to Adi Cohen, MD, MHS's response:
Thank you very much for the response. My daughter has been on estrogen (birth control pills) for the last 8yrs and she has seen a doctor at Mass General in Boston. Their findings for the premature ovarian failure was that she wasn't born with enough eggs. She is going to see a bone specialist in another month and she is not going to take the fosamax until she has talked to the specialist. Our biggest problem is that we are 400 miles north of Boston and about 170 miles from any kind of specialist. The doctors up here have a hard time treating her because it is so uncommon in this area. They are treating her like she is 50yo, and when we ask any questions they can't give us any answers. It is really frustrating! Again thank you!!!
 
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SWEETSAL1968 replied to pattiii's response:
Thank you for the help!!!!
 
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SWEETSAL1968 replied to foxtrotblonde's response:
Thank you for the help!
 
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SWEETSAL1968 replied to Tomato05's response:
Thank you for the help!


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