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Sever osteoporosis
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Lezah2 posted:
2 years ago I was found to have osteopenia at T - 2.4 on my spine, I have since had another scan which showed it is now T- 3.5 which I believe is quite severe. The reason I believe I have this is because I had breast cancer and was treated with amongst other things an oopherectomy and arimidex which left me with no estrogen. I raised my concerns with my breast cancer specialist who told me to just eat cheese, not to take calcium as it causes leisions and to keep off the biosophonates. I am not due to see her until July and am trying desperately to get in touch with her to find out what she thinks I should take now that I have followed her advice and ended up with osteoporosis. My own research points me towards Strontium Citrate and I wondered if anyone knows if it has any bad effects towards breast cancer, and kidneys (I only have one). Has anyone seen a reversal in their bone density, and if so, could you please let me know by how much you reversed it what you did to achieve this. Thank you.
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bonebabe responded:
There is no data that shows strontium citrate has any effect on the bones. Strontium Ranelate, which is a prescription drug in Europe and includes othere meds binding to it, is being tested here in the US for use as another choice in the prescription meds we now have available.

Strontium Citrate is not regulated nor tested. No one knows exactly how much to take, or even if what's labeled as in the bottle really is what's in the bottle. The reason people who take it believe that their density has improved is because it gives a false positive on the DXA scores. Because the software used in bone density testing only measures calcium, putting strontium citrate, another mineral, in your body appears to elevate the calcium levels, making you think your bones are better than they are.

At a -3.5 score, you need to do some immediate and proven intervention. There is nothing natural, no matter what you read on the internet or hear from lay people, that will reverse what you have at this point. We've had this discussion many times on this board. As a disclaimer to myself, I do not work for a pharmaceutical company, nor do I or my coworkers write prescriptions or advocate for a particular medicine. We do work in an internationally accredited osteoporosis center within a hospital where we test, hold rehab and education classes, have a support group where we hear their stories, initiate and moderate exercise and yoga classes for people with osteoporosis right here in our own hospital fitness center. We also have a mobile unit that goes out into rural areas to test people who can't get in to us,we've participated in two special studies on osteoporosis in conjunction with UNC Chapel Hill, and...we've been filmed twice by PBS out of NYC on our multidisciplinary program. We see about 4000 patients a year and I can tell you without qualification that no one, not a single one, has reduced her risk of fracture by natural means alone. Not one.

Conversely, we hear many times how they wish they'd not wasted the years necessary to determine gain or loss by taking unregulated supplements or increasing calcium only, etc. During that time, their bone density decreased as their fracture risk increased.

I can also tell you that the lifelong side effects of a vertebral or hip fracture are many times worse than any side effects from a prescription drug that has been proven to help. Once your spine breaks and you become bent over and suffer pain until you die, and your independence is at risk, you will wish you could have a do-over.

What you decide to do about your health is totally up to you. I'm just giving you the benefit of my knowledge and experience so that you can make an informed decision. As I tell my patients who feel they have to convince me, "If you break a hip, I can still walk. Your decisions affect you, not me."

I wish you years of good health with the ability to do the things you want.


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