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Is there no one in this group?
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princess__spot posted:
I was just wondering if there were members of this group who post? I don't have a diagnosis...I'm going through testing (ct scan & bloodwork today) but the ultrasound report showed a complex cyst with both fluid and solid parts and a suspicious nodule. They are removing the ovary and doing biopsies and so far it is suspected cystadenocarcinoma. I have abdominal bloat and swelling, gas, vague generalized pain in my upper right quadrant and just feeling like my stomach is huge. I would like to hear other peoples stories while I wait to see how mine turns out. I have plenty of friend and family support...but I don't want them worrying and stressing out...so mostly I laugh and make jokes about the possibility of it being cancer. It would be nice to have some people I could be "real" with.

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silvergirl38975 responded:
I am here in the group. Ovarian cancer survivor of 13 years now. Stg. 4. I wish you good test results my friend. Jan PS Let me know how all goes.
 
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princess__spot responded:
Thanks Jan! It's glad to know someone is out there. I go for my pre-op appt tomorrow and they should have the ct scan and bloodwork back so they will possibly know more. I will let you know.

Spot
 
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silvergirl38975 responded:
Okie dokie.......let me know kiddo. Keep good thoughts now ....I will. Be well, Jan
 
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Ironla responded:
Hello princess and everyone. I too do not have a diagnosis yet but received a call today from my Gyno that my vaginal ultrasound showed a mass/tumor that concerned her. I'm having bloodwork done tomorrow for the CA-125 and another ultrasound. Princess yours and my situation and symptoms are almost identical. I have complained about abdominal bloating and this crazy serious pain behind my right breast and in my side area and no one seemed to be interested in it or said it was "probably" a pulled muscle. I pray for the best outcome for both of us (all of us really) and much strength for the future.
 
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ronw6745 responded:
We are here....spouse at Stage III and just completed 2nd phase of chemo 2 weeks ago and attempting to get into a good trial to aggressively treat condition. However, found another problem the other day after a CAT scan, a blockage of right urethal tube fromm kidney....Doctor says we will have to correct that before further chemo treatment. What has been your experience?

God Bless you.
 
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jackiedevon responded:
I'm in this group, you are not alone. You are doing all the right things getting tested and doing biopsies. Please let me know how those go. This is my story, as a 42 year old woman I have always been in good health. In April of ?08 I started getting cramps in my stomach. I didn?t think that much of it, except that they persisted for several weeks and occasionally I was getting sharp pains along with it. We were on vacation, so I went into a local hospital ER. The ER did blood work, a CT-scan, and an MRI, and said there was nothing seriously wrong; I just had a urinary tract infection (UTI) and a small cyst on my ovary that should go away on its own. They prescribed medicine for the UTI, and advised me to check-in with my OB/GYN in 2-3 months as follow-up.

However, the cramps were still persistent. When we got home, I made an appointment with my general practitioner thinking perhaps I had an ulcer or some other stomach issue, and he could refer me to a GI specialist. I was diagnosed as having Irritable Bowel Syndrome. But again, the diet changes and medicine were not alleviating the symptoms. At the suggested time, I went for follow-up to my OB/GYN and with a transvaginal ultrasound they found that the cyst had grown and scheduled me for laparoscopy. The day before my surgery they did my blood-work and found my CA125 to be over 3,000, normal is between 0-35. I had advanced ovarian cancer which had spread throughout my abdominal area in a little over 2 months. I started chemo the next day. I have since been tested for the BRACA gene, and I am BRACA1 positive which means that I am at high risk for ovarian and breast cancer. I had a total hysterectomy (including ovaries and cervix) in December 2008 after my chemo, and I will have a double mastectomy this summer. I am currently undergoing additional chemo targeted at women with BRACA1.
 
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Teen_011 responded:
I am Emma Luden. I am 17 years old. I have been battleing ovarian cyst for a year now, and now my doc's think it may be worse than we thought....it could be cancer.
 
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Teen_011 responded:
this may be hard to believe since i'm only a teenager......but what your going through just may be my next step in my life. I have been battling ovarian cyst of a year and one just won't go alway. it just gets bigger and the smaller and now my syptoms have progress and I was told I had to go see a specailist and have it checked for cancer. It may seem hard to deal with the possibillty of CANCER. but, prayer's are the best things in the world, and you're are in mine. I may be young....but i have faith in the lord....to heal me or give me the strenght to face the worse
 
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momfightingformygirl replied to Teen_011's response:
Hi, Teen_011, It has been a long time since this post, but I am very new to this battle. I hope that things are going well for you. My 14 year old daughter had surgery a few days ago to remove her ovary with a tumor larger than a softball. We are still waiting to hear from pathology to get the stage. My daughter is scared and so am I. We would love to hear from you, and anyone else. We have strong faith in God that he will take care of her and heal her or give her the strenth she needs, just like you. We are praying for you and everyone else facing this. I hope that someone responds....
 
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wekie responded:
Hi-I was told i had 2 months-four if i was lucky-I was forth stage cancer-I went to Rosswell cancer center for a second opion- in Buffalo and was told the same thing-I did not do chemo-or any type of conventional treatment-I was told by alot of different doctors that chemo and radiation wouldnt help because of my cancer being so advanced-and it would only get me a few more months if i was lucky.I went on the internet and started taking herbs to build up my immune system and I got some thing called Iscadoor from Germany and you give yourself shots in the stomache every other day-My ca125 was 10000 to 25000-when i started-and i was having parasynthesis to take the fluid out of my stomache every week-This was Sept of 2008 and as of today i have not had to take the fluid out in over six months and my ca125 is 9.7 Hope u are ok too.
 
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wekie replied to Teen_011's response:
Hi-I was given two months four if i was lucky-I had fourth stage cancer-That was Oct 2008-I did not do chem or radiation-I took herbs to build up my immune system-And i also took Iscadoor from Germany-a natural thing as well-as of today my ca125-which was 10,000 to 25,000 has dropped to 9.7 and i am feeling great! I no longer have had to go in and get the fluid drained out of my stomache every week.My doctor says i am a miricle and i say with God all things are possible-If you believe something then you can do anything -all you need is faith and hope-I wish you luck -You are a strong person-believe that you can be healed and it shall come to pass. Barbara
 
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wekie replied to momfightingformygirl's response:
Hi I have fourth stage cancer-and was told two months-four if i was lucky-My ca125 was 10,000 to 25,000 that was Oct 2008 and today my ca125 is 9.7 I no longer have to go in the hospital to drain the fluid out of my stomache-I never did chemo or radiation-I cant believe that something that destroys the good as well as the bad cells can be good for you.So i took herbs to build up my immune system and something called Iscadoor from Germany-I eat lots of fruits and veggies-But mainly i have faith that God will be there for me and you too-Hold out your hand and ask and he will be there to take it and guide you-If you believe then all things are possible-Your goals and options are limitless-Anything you want-If you have faith and you can believe-then it is possible.I wish you luck-Believe that there are many of us out there praying for you-Find strenth in that.Good luck and God Bless.
 
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eleganse responded:
6 years ago I sat in an emergency room and heard the words Ovarian Cancer. I was shocked. I had been to doctors who said it was ulcers, Drs who said I needed fiber.. By the time I went to emergency, I had lost 50 plus pounds, was so bloated I could not wear undies and could swallow about an ounce of liquid at a time. After diagnosis, they aspirated 7 liters of fluid from my abdomen, did a hysterectomy and sent me on for 9 sessions of chemo. my best advice is see a gynocological oncologist. The best you can find. Mine had no personaliy, kept people waiting for hours, and never could remember exactly what Parkinson's disease was (I have that too)... but I didn't want to date the guy, I wanted his passion, which was curing ovarian cancer. My ca 125 is down to 3 from the original 1600... and I am still here... a survivor
Good Luck, God Bless and let me know how YOU do.
Paula
 
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eleganse replied to Teen_011's response:
People of all ages get this - it is no respector of age, religion, stage of life etc. I too have faith that God has a plan for us and I do not need to know it, just walk my walk with faith. Keep believing that God is on your side, and victory is yours. Prayer said for you...
Paula


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