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Bone marrow edema
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cesarsmom posted:
Hello. I was recently diagnosed with bone marrow edema in my scaphoid and lunate bones. It is extremely painful, especially later in the day and seemed to get worse after the Doctor poked around on it. I am taking vicodin 5/500 for it 4 times a day and it?s not helping much. I?m scheduled to see a specialist next week. My PCP said the first line of treatment is usually a (cortisone, I think) shot. What I wanted to know is if anyone knows if this shot would be in the bone or the joint and if it is painful? How long it usually takes to heal and if can heal completely? If that doesn?t work, what is next? Also, is there another name for bone marrow edema besides a bone bruise, because I?m not finding a lot of info on it? I know this is a lot of questions; any help would be greatly appreciated. Thank you very much in advance. Dee
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gailb54 responded:
Hi Dee. I'm sorry that I can't be very helpful to you but I can tell you that I also have been diagnosed with bone marrow edema after an MRI on my toe and it is very painful so I understand. I also have probably RSD and definitely nerve pain of some kind, but I can specifically tell the pain from the bone marrow edema because of its exact location and sometimes it hurts more than the other things. Do you have a bad time with weather? Mine is really bad with cold fronts and storms. I was wondering if you know what is causing your bone marrow edema? Mine is two years after a surgery and they don't know what is causing it. The reason I ask is because I tried to talk to my doctors about treating what was causing it (if possible) rather than just the symptoms, but we don't know. One doctor mentioned a bone marrow biopsy which I think would be very painful, but was concerned that it could make my RSD worse. Have your doctors mentioned a cause of this? Anyway, I was just going to say that I have had a number of kinds of shots in the area of my toe where this is and nothing helped. That doesn't mean it won't helped you, because our situations are different and the doctors always start with the simplest and less invasive things first. Have you had an injury? Have you had this very long? My is killing me right now and I was up all night last night despite the pain meds I take. Mine also is much worse later in the day, or more specifically with any activity. I guess the more you use your wrist it hurts more, that's what it is with my toe. Do you use ice to try to help the pain and swelling? That is the ONLY thing that sometimes will help mine. I am guessing, because it's one thing I keep forgetting to ask the doctors, that the edema (swelling) responds to the ice as other types of swelling respond to ice. Only my guess. I wish you the best in trying to get well and get rid of the pain. I know how hard it is to try to do the things you need to do when an important part of you is in extreme pain. If you find out anything that does help you, please let us know! Best wishes and take care, gail
 
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dee95126 responded:
Gail- Thanks for the reply. I don?t know what is causing it, but I did have DeQuervains last year from a fall and at first I thought maybe it had come back. I see the doc next week and maybe he will know if it has anything to do with it. Ice does seem to help. Do you know if they give you the shot in the bone or joint? I had a shot in the tendon for the DeQuervains and it really helped. I haven?t had it long enough to know for sure if the cold weather makes it worse but that is when it started hurting. I wonder what they do if the shot doesn?t work. I hope you start feeling better soon, two years is a long time. Thanks again. Dee
 
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annette030 responded:
I had deQuervain's tendinitis years ago. They did rest with a splint, cortisone injections, then he finally did surgery. I wished he had just done that first, lol. It took him 7 minutes from when he did the incision until the last suture was placed. He did it with just a local anesthetic, I stayed awake and unmedicated so I could watch. I had near immediate pain relief. All I have left is a scar that most people would not even notice, he did a great job on that. I can't help with your other problems, but the deQuervain's is usually nothing to worry about. If you also have RSD, then you need to be careful with any kind of surgery, discuss this with a doctor who manages RSD. Take care, Annette


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