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Wrongly accused of drug seeking and ER missed real diagnosis on 10 ER visits!!!!
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rj0706 posted:
Ok so I'm new to this board. About me: I've had kidney stones 6 times in 8 years, twice of which I had lithotripsy,and once had to have a stint put in which a doc tried to remove too late and my skin had grown over it.Instead of an easy in office procedure to remove they had to put me under and do it surgically.Then on top of that i've had 2 knee surgeries, the first was sports related (ACL) and the second to fix the problems the first had done 8 years earlier.Then on top of that I've fractured my tailbone while pregnant in 2007, and before that in 2006 I was in the back of an SUV that got in an accident on the highway where we were going 75 mph and our tire blew and we flipped 3 times accross the road.Needless to say I have back,tailbone,knee and all sorts of pain issues.Now here is what this post is really about. I always tell them about my regular pain meds i'm on up front. Ok so to add even more to all that 3 months ago I started have excruciating abdominal pain and also down in my pubic bone.I went to an ER thinking I had another kidney stone in the middle of the night bc I was writhing in pain.I get there and they CT me and do a sonogram and there are no stones.They look for another sign of something and see nothing.They pump me full of meds and then send me home.THis happens 3 more times within the next week and a half and i'm turned away each time with a shot of pain meds and a few percs to get me through the night.Needless to say no one discovered my pain or appeared to even by trying to discover what was causing all this.This hospital FINALLY admitted me after a tearful plea from my husband who had watched my scream in pain waaaaay too often.They had a urology consult, a OB/GYN consult etc and ALL they did was push on my stomach and say I think it could be a really bad UTI and put me on meds.I've had UTI's before and they are not very painful, annoying but not true pain.Anyway, I insist they are wrong they ignore me and send me home.Finally I have had it with this place and try a brand new hospital 5 miles away to see if maybe they can figure it out (At this point no insurance coverage and couldn't afford to go to specialist)so they run the SAME 4 tests, CT, sonogram, urinanalysis, and hemotology (blood tests).They also say,"We can't find a reason for this.Even though every time I have come my BP is high and my pulse is high and crazy.Each time they look at me skeptically but give me IV meds and then send me home.By this point I'm pissed,I've lost the last 3 months of my life to the most excruciating pain i've ever had.Last week I go in AGAIN on Wed. and have the same pain like i'm dying..so this is my only option and i'm in pain and the doc just gives me a skeptical look and then says"Well i do notice you're on rather strong narcotics"Duh Did you see my records? So anyway after 6 trips to this ER on my last visit the ER supervising doc comes in and reads me the riot act. He,in front of my father,accuses me of drug seeking,tells me I need to seek 'help' and to not bother coming back there bc they WILL NOT treat me. the next day I get my parents to help come up with the money for me to get one appt at a new GP doc (i'm new to the area) and I go in there and tell him all this.The first thing he says is did they do a pelvic?Um no.Anyway he does it sees IMMEDIATELY that my cervix is inflamed, swollen, and just a mess. A symptom of PID. He said "wow, this is obvious"I'm baffled. He said I have no idea how you have even been walking around bc if this infection has gone on for months it could be up in your ureters etc. Finally I get to hear that I am not crazy and i want to take this diagnosis and smack that other doc in the face with it. All that time and all that nastiness that the ER sup. gave me and he was SO WRONG! If it goes away soon with the antibiot. we will no this was it. If not could be also endometriosis. Also something they NEVER checked me for or mentioned.I'm contacting the hospital admin. Mon. I'm PISSED!
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_swank_ responded:
Unfortunately, your first mistake was going to the ER repeatedly. They are there to get you out of danger and send you home. They don't do exhaustive tests. After leaving it is up to you to follow up with your own doctor and find out what's wrong. They should have given you the name of a doctor to follow up with. It's often a waste of time and money to go to an ER when seeing your own doctor will provide a quicker and cheaper solution.
 
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rj0706 replied to _swank_'s response:
DIdn't have insurance and didnt have the $200 the PCP was asking for for an appt. until FINALLy my fam helped and chipped in. So they were really my only option when I was in so much pain I couldn't stand it. I was not able to eat, sleep or do anything for days at a time. Lost 16 lbs in 2 months. I know that they aren't prepared to do a whole bunch of tests but just a pelvic exam???? That's all it would have taken. Any woman coming in with pelvic pain I would think they would take the 5 minutes to do a pelvic just to rule out some quick things....not a very specialized expensive test or anything.....
 
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_swank_ replied to rj0706's response:
You do know that you have to pay for the ER visits right? Much more expensive than the $200 for a PCP visit. That was my point. You wasted all that money up front when one visit to a PCP would have been all you needed.

I don't know why they didn't do a pelvic exam. Much gets lost in translation. Communication is key.
 
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rj0706 replied to _swank_'s response:
I understand, it's just it could get billed and i could make payments and doc needed it up front. And at 3am when I was screaming and rolling around I wasn't worrying about that....lol. I just needed it to end!
 
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Reta32205 replied to rj0706's response:
I understand your pain because I have had a PID. Didn't they do any blood work? It should have shown up on the blood work. You may have a possible lawsuit if they did not do blood work, this is a simple case of malpractice. I would go to a lawyer about it. How any others have they missed something serious and they treated them like a druggie? Those doctors owe you an apology.

I went to the doctor because I had had a fever for several days that would not go away. I had been in 3 days earlier for a suspected gallstone attack. I was 10 pounds lighter and had a fever. I was sent to the lab for bloodwork. When the results came back, my doctor told me I had the lab boys worried because my white blood count was 4-5 times what appendicitisis would give you. He said we don't know what is wrong but he would start at the top and work till he found an answer. He found the answer when he did a pelvic.

I was in the hospital for 4 days on some powerful antibotics that burned my urinary track as they exited.
 
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Reta32205 replied to rj0706's response:
They should forgive your bill, because they failed to properly diagnose you.
 
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rj0706 replied to Reta32205's response:
Well I'm hoping that they will do something. I'm calling first thing Monday morning to the hospital administration and to their patient advocate (social worker) to discuss everything. I WISH I had the ER supervisor on tape saying the nasty things he said to me on my last visit. My brother in law is a doctor and said he violated HIPAA regulations on a couple of different things and I could have him at least sanctioned properly. Nobody should have to be treated like dirt especially when they are sick and begging for help. Apparently if you don't have insurance you aren't very important to anyone.....He just seemed hell bent on putting me in my place and didn't even think that maybe I was an actually sick. Geez....
 
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annette030 replied to rj0706's response:
That is one of the problems with our system of medicine. Folks without cash can end up in the ER instead of their doctor's office. The ER should not be the only place a person can go for medical care if they don't have cash up front. It is in many of our communities.

Swank is correct, the ER is only prepared to rule out emergency findings in most adults, then they pass you on to your pcp or a specialist, and ignore the money problems involved with that.

If your cervical infection goes away and all your other symptoms also go away, then I would put the onus on the OB/GYN consult that you had on one visit to the ER. PID and cervical infections are their area of expertise and he/she should have figured that out on examination. If the GYN did not do a thorough exam, I would talk to them. However, with PID, the pain is usually so evident on the external exam, that the pelvic is done mainly to gather cultures and specimens and to verify the infections.

If the cervical infection goes away, and you still have abdominal pain you are back to square one.

I will keep my fingers crossed for you.

Take care, Annette
 
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annette030 replied to Reta32205's response:
I disagree with that. If a patient comes in and wants scans and other testing, like some do, and it doesn't show anything, someone has to pay for them.

Not all illnesses even show up the first time someone comes to the doctor. Their symptoms may be a bit vague or not textbook, and it might take time until their illness is diagnosable.

What if the doctor gives the patient a diagnosis, but the patient does not agree with it? Who pays then?

Until we change our system entirely, or change it legally, I think we are stuck with it.

Just my opinion.

Take care, Annette
 
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annette030 replied to rj0706's response:
I would wait and make sure the physical problem has been fixed. Then you will know more and be able to write a better letter. Write it carefully, and put it in a drawer for a few days, then take it out and read it again, edit it if necessary. Then mail it to whoever is the person who can fix the problem.

Best of luck to you.

Take care, Annette
 
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Geradine4733 responded:
Sorry for all your pain and suffering, RJ. It is sad that so many people do not have insurance.
 
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An_223332 responded:
Hi, I understand how frustrating all of this can be for a person in chronic to severe pain. If you do in fact have endometriosis, that is severe pain. I had that when I was in my late 20's. My gyn did a laporoscopy and found that I did in fact have that. After hearing this info and at least having 1 child, they recommended that I have a complete, total hyst. The pain from this endo...is excruciting and at that time I was working. It hurt so severely that I could hardly get to the restroom w/out screaming with pain. After seeing a few other docs for opinons, I went ahead w/the hysterectomy. Good luck to you. I understand your pain.
 
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ctbeth replied to rj0706's response:
then why didn't you go to your PCP the morning after the first ER visit?


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