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any advice please
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haterofpain posted:
I am new to i have bben dx with FM after a car accident made it more noticable after i had 3 hernated disk and 2 pinched nevers and the pain went away now my dr. wants to take me off my vicodin and the only thing that makes my day just tolerable and i have job that works me 40 plus hours a week and a daughter whos 9 who wants to play and a huband whos trying to understand but is getting mad that i have not really helped unpacked after we moved in feburay and really i am getting very mad and upset that i can not go 100 miles a min like i used to and do 18 hour days i miss the pain free days and i am sad i can not seem to play with my daughter anymore. so if anyone has any ideas on how to deal without jumping off the cliff.
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Caprice_WebMD_Staff responded:
Hello and welcome here,

I'm glad you found us. Everyone here (including me) deals with chronic pain for one reason or another and know how it can impact your life. You've found a great place of support here.

While you're waiting for others to respond, do some reading of some of the other discussions.

You'll see you're not alone and there may be some ideas on how to cope with all of this out there.
We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell
 
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annette030 responded:
I would learn all you can about FMS, this helped me a lot. My favorite site for good medical info is http://www.myalgia.com . Your husband might need to read about it too so he is more understanding of what you are going through. It may be doubtful that you will ever be able to do the things you used to do easily, you may need to readjust your sights so what you can do fits your life better. I have FMS, I cannot work anymore, and can't do many things I used to do, but life is good, I am happy.

Is the doctor who gives you vicodin a pain management specialist, an orthopedic surgeon, some other kind of surgeon, or what? What other meds do you take? Vicodin may be the right drug for you, or it may not be, a combination of drugs might work better for you. Perhaps seeing a rheumatologist might also help you.

Keep in touch.

Take care, Annette
 
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Peter Abaci, MD responded:
It sounds like you have a lot on your plate. Dealing with ongoing pain, AND maintaining a successful career, AND being an active mom and spouse probably means that you never get a break. There are two things that I would like you to keep in mind:

The first is everybody in pain needs tools. The more tools you have, the better control you will have over your pain. Medications, like Vicodin, can be one tool in your tool box. If that is the only tool you have so far, then certainly losing that creates a stressful situation. Consider scheduling an appointment with your doctor where you talk about a plan to help you develop lots of pain management tools, and see if he/she will consider not making any medication changes until after that process is going well for you. That would be a more optimal approach to re-evaluate the plan for the Vicodin.

The second point is the importance of leading a balanced life in overcoming pain. Please set aside some time each day for you to focus on you. That might mean getting some fresh air, a little exercise, or some quiet mediation time. I know that sounds difficult when you have so many responsibilities and people depending on you each day, but the better you take care of yourself the better you will be able to help take care of others.
 
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Dollbug responded:
Hello.....MiMi in NC....I normally post on the FM community ..and would like to invite you over to check it out as well....we are so very blessed to have 2 doctors on board also....Dr. P and Dr. Margaret also...

I would also encourage you to get your Vitamin D level checked....as this can be important for a lot of people...low Vitamin D can cause additional pain and it can also affect other illnesses as well...it is a simple blood test...but you MUST ASK the doctor to run it..as it is not included (yet) in the normal bloodwork that the doctors do....

I am sure that you will find something that will help you cope better...but it does take a trial and error which does take time and effort....you will need to learn to pace, pace and pace....which can also help you cope better...I can not even imagine trying to work a fulltime job now....and take care of a child also...

I will also tell you that getting stressed about anything does not help a person....as I have been there and done that...
Stress does cause us FMers more pain...(jumping off the cliff should not be an option for you...as I am sure that with time...things will get better for you...

Take care and good luck..


MiMi
 
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siameesha responded:
Sorry you are having so much pain. Please, please try a massage therapist who is trained in neuromuscular and craniofacial therapy. I was facing surgery for scoliosis, also have fibro.I have been going weekly for 1 1/2 years now and no longer need pain meds, nor do I need or want the surgery.
Good luck with your search and may the good Lord watch over you.
 
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steverreno replied to Caprice_WebMD_Staff's response:
Never give up---never take the easy road; stay the course and fight the good fight and then at the end "accept the one that is waiting for us" if that's the life you want.

Steverreno
 
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An_223752 responded:
I have suffered from chronic pain in various parts of my body so I understand how unbearable life can be. I have two young grandchildren who always want me to play with them (in addition to my work). It tooks a few years but I found a doctor who is not afraid to treat the pain (osteoarthrisis). I take MS Contin along with Hydrocodone each day and it enables me to cope. It doesn't eliminate the pain but does offer more relief than I could expect otherwise. Most doctors want to put me on anti-inflammatory crap that tore my stomach up and didn't help. Please don't give up! Hope you can find the right doctor...
 
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vesuvius13 responded:
You have gotten some good info on how to deal with your pain and I agree about creating a balanced life. You also have to come to accept you can't do as much as you used to do. At some time in our lives all people have to accept this but for you and those of us with spinal issues have to accept it sooner.

After a decade of surgeries and more bad disk from degenerative diseases I am very limited with what I can do any more. I have found however that if I deal with today, not later today, tomorrow, or in the past, I can deal with the pain. If I think about what I have gone through or will go through it is too overwhelming. It is very important to start thinking about right now as we can deal with what we have to go through that way. You will have to accept a new approach to life and I hope you are able to do that as you will find there will be only a few things that will change a lot.


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